Nichols Notes

January Jots

2011-02-08T21:25:00.000-05:00

We had a wonderful January celebrating birthdays, visiting with family, and miscellaneous other events!! That's just because I can't remember them all!!!

Things are going pretty well:) I feel good most of the time....winter I'm sure takes it's toll on many of us! Ken's had a couple of trips in January...one to mid Illinois/Indiana...and another very quick trip to Florida. FIAMM is keeping him busy!

Joel started working out an "Anytime Fitness" in Cadillac at the start of the new year. He is doing quite well...exercising three times a week...eating well..and has actually lost several pounds! During the winter it is very convenient to stay inside and kind of "hibernate". So we thought this would be a good challenge for him. Happy to report~~~He LIKES it!

Our Dad sold his house in January....amazingly after only three months on the market. It was bittersweet to think we would not have a home to visit in Onekama anymore after 50+ years. What made it somewhat cushioned is that Dad was confident about the sale...and is adjusting well to life in Cadillac.

During the week he seems to find alot to do...but the weekends are a little quieter. So that he doesn't feel cooped up in the winter...we have started picking him up on Saturdays and bringing him out to the house. Linda visits frequently...which we ALL enjoy:)

Birthdays celebrated in January were grandson Andrew's 6th b-day and Ken's 54th. I had the pleasure of traveling to Kenosha, Wisconsin with Heidi's parents to celebrate Andrew's birthday...Ken drove me as far as GR where I rode with Ron and Carol to Wisconsin. Joel had a Special Olympics tournament that weekend...so Ken stayed behind to hold the fort down

Things are pretty exciting for Kurt and Heidi and fam as they have plans to move into their new house the end of February. They have been renting a townhouse in Kenosha...and found a lovely home in Racine, Wisconsin. We are hoping to help them move when they are ready:)

Jason and Emily and fam took a trip to Arizona to visit Emily's sister Sarah (Mike and family) and also to go to the Tuscon jem show. (buying trip to Wexford Jewelers. http://www.wexfordjewelers.com/ Other than several 'airline" glitches...they had a wonderful visit and savored the warm weather and family time.

There never seems to be a dull moment in our lives~~
I'm not particularly thrilled about winter and the bitter cold....but I do enjoy getting around more this year than last:) I find myself busy with our local Area 32 Special Olympics, serving on their management team and publishing the newsletter, active at our church...singing in the choir, leading music at AWANA, taking care of grand kids every Thursday, chaufferring Joel here and there, visiting my Dad, and enjoying every moment that Ken is home!!

I still feel very bad that I am not as faithful to updating our blog as I am to my daily "musings" on Facebook. But I guess once a month is as good as it gets for the moment!! We are already in to the second week of February! On the 5th we wished Happy Birthday to our daughter-in-law Heidi, and brother-in-law Don. Joel has several b-ball games this month, and I anxiously am counting down the days to SPRING!!!

I have a keen interest in current events and having been daily following the news locally and internationally! There are so many people we can be in prayer for! I encourage you to "jump" at the opportunity to uphold friends, family, and those you have never met in prayer....for the needs are great...and the privilege of coming to throne of God on your knees is life changing!!!

Christmas Memories 2010

2010-12-28T22:50:00.000-05:00

Christmas Eve with Dad

Dad and I in front of the new England Village
Mom and Dad collected these pieces for years...
when Dad moved into Green Acres he brought the set with him.

Linda and Don Christmas Eve

Dad and Linda Christmas Eve

Ken and I opening our card

Dad opening his gift from us
A 16 x 20 picture of our entire family taken Nov. 20, 2010

Dad, Linda and me

Christmas Day at Green Acres 12/25/10

I knew that Christmas 2010 would not be the same without Mom...but I don't think anyone could have prepared me for the sadness in my heart when the eve and day actually arrived. I had a perpetual lump in my throat, tears welled up in my eyes, ready to pour out at the mention of "Merry Christmas" for nearly three days.

Please don't get me wrong...I love Christmas!! I love celebrating Jesus Christ's birth!!! I cherish the memories in my heart that have been made during my lifetime.....but this Christmas...I put on a good front and struggled through.

Christmas Eve was special because Linda and Don came to Dad's apartment where we gathered with them to exchange gifts with Dad. We all went out to dinner first at Ponderosa in Cadillac. Special memories had been made there years before!! When our kids were younger...and just before Dad and Mom went off to Florida for the winter they would take us there for supper.

It became an annual "smorgasbord" for almost 20 years!!! Hopefully our boys remember those times:) So this time we had our smorgasbord...then went back to Dad's apartment #211. We exchanged gifts...remembered good times...and said our goodbyes....

Christmas day we exchanged gifts with Joel and headed over to Dad's for Christmas dinner at Green Acres. Jason, Kurt and their families have established their own Christmas day traditions with their families so for the past several years we have had our "Nichols Christmas" the week before.

They both called us on Christmas Day.....I tried my best...yet admit I didn't do very well.

Our Christmas meal was wonderful and the company was delightful! But deep down was the fact that most Christmas afternoons in my lifetime , this daughter has "gone home to see her mother". I've been told by many friends that it is common for a daughter to "go home" and for a son to go to his in-laws.... But for me "going home" has changed.....and over time....I'm sure I will get used to it:(

This year after dinner....we went back to our home....Dad with us....again I was choking back tears as to not upset Dad. I know he was sad too....as was my sister Linda. We have always been a close knit family.....started out as the "four of us" and growing over the years into "twenty-four of us". What a beautiful blessing our family has been to us!

I know that so many of you have experienced what I am talking about in your lifetime. Maybe you have lost a parent, a child, a spouse, a friend. holidays and special gatherings can seem unbearable during those first few years without your loved one....but by the grace of God...and the comfort HE gives..we will made it through.

We have experienced this before....Ken's Mom passed away 25 years ago...just after Christmas, Ken's Dad passed away in 2006..right around Thanksgiving...it is never an easy time...but we have the hope of eternal life to see one another again forever...never ending!!!. It makes our time on earth seem like a fleeting moment......

Please accept my apologies for rambling on...but I am grateful I can share this with you....the reality of life and death.....the reality of every day living.

So tomorrow is a new day....a stronger day emotionally day for me! I am thankful for living....I am thankful for the time I can spend with my family and friends...I am thankful for Jesus coming to earth as a baby in a manger.....dying on the cross for our sins....and providing a way for us to be with Him in eternity!!!! Now that is a reason to celebrate Christmas!!!

"Nichols Christmas" 12/19/10

November News from the Nichols.....in DECEMBER:)

2010-12-14T20:28:00.001-05:00

We had an absolutely wonderful November....and may I add....very busy!!
We celebrated grand daughter Madeline's "2nd" birthday....took a quick trip to Kenosha to see Kurt, Heidi, and family....had a birthday party for Dad celebrating his 87th birthday....and enjoyed a wonderful Thanksgiving dinner with Jason, Emily, and family.

Looking at our November calendar...I was shocked to see how fast our days filled up!! Then......before you knew it...December looked the same!!

In between all the birthday celebrations and trips and babysitting and choir cantata rehearsals...and bathroom remodeling...and bringing in fire wood..and keeping up with Joel's schedule.....visiting Dad...and getting proper rest....and posting on Face Book (real important)....we find ourselves quite content and able to fit in a few episodes of 'NCIS" and the news!!!!

I'm sure you can guess who does what jobs listed above!!!

Now that December is here...I am excited to say I think we are ready for Christmas.....and anxiously awaiting our family celebration with our sons and families in a few days:)

We sang in the choir cantata for our church on December 5th "O Holy Night". It was beautiful!! This year Ken and I both had solos in the cantata...Ken sang a song called "Joseph".....I sang a solo in the song "Be it Unto Me".

We were scheduled to watch Kurt's kids overnight last weekend...but the snowfall hit Northern Michigan....and our plans changed:(

This week we will be attending a Christmas concert presented by students at Heritage Christian School. I will be directing the young fives and kindegarteners in their Christmas medley. I have had the privilege of teaching the children once a week on Fridays....they are precious and so much fun!!

This will be the first Christmas without Mom....and I am finding myself with mixed emotions that I will save for another blog....but I am grateful for her life....her testimony...and her love for her family. We are experiencing great joy as we prepare for Christmas....a joy that our Mom would want us to have in our hearts.....to keep our Dad safe and sound....to be together to keep the traditions alive that we enjoyed while we were growing up.

Enjoy the pictures....see you soon:)

Madeline;s Birthday trip to Toy Town with Grandma
for her "2nd" birthday. http://www.toytowncadillac.com/

Kurt, Heidi, Jon, Kirsten, Rachelle, Andrew
at Grandpa's 87th birthday party.

Dad and Daughters

Happy 87th Birthday to Dad
November 21st, 2010

Jason, Emily, Isaac, Madeline, Annabelle, Seth
at Grandpa's birthday

Jason and Emily's kids on Thanksgiving Day

Kurt and Heidi;s kids at Grandpa's party

Our entire family celebrating Dad's Birthday

Jason and Emily and family

Our visit to Kurt and Heidi's in November

Grandpa and Kirsten

Kurt and Rachelle

Ken, Heidi, and kids after we ate at the Rainforest Cafe:)

Dad with two of his good friends at Green Acres
Roy Wolverton and Margaret Bass
They play skipbo almost every day

Me, Kurt and Heid at Dad's party

Grandpa and his 9 great grand children

Happy Birthday to our grandson Jonny:) Four years old!!

2010-10-30T21:48:00.000-04:00

Today we enjoyed a wonderful time with Kurt, Heidi, and family celebrating Jonny's fourth birthday! I can't believe how fast he is growing!!!

We all gathered in Wyoming at Grandpa and Grandma Scott's. Kurt, Heidi, Ron, and Carol had the garage all decorated for food and games:)
Jonny had such a good time...and was very thankful for his birthday surprises!
I was VERY impressed how his siblings patiently sat and watched as he opened his gifts!

Times like these are very precious to our hearts...and we are so thankful to be able to share the joys of our children and grandchildren.

October 2010.....three years later

2010-10-29T10:17:00.000-04:00

I'll never forget October 2007....the official diagnosis of my scleroderma, the last choir concert I would ever direct at CHS, the last day of teaching in the classroom.

Three years ago I was in Blairsville, Georgia at a health ministry retreat called "Times of Refreshing". Even though the three week retreat was very beneficial to me in many ways....my scleroderma was advancing at a very fast rate....and to make a long story short...upon my return to Michigan I went under the watchful care of some really good scleroderma specialists...and a treatment program was started.

Three years later....October 2010...I am literally beating the odds.
Now we all know....that it's not the odds that I'm beating....but rather God's perfect plan unfolding. HE is the one who has shaped my life, my path, and my skin. HE is the one who hears the prayers and petitions of His children....HE is the one who gives me hope, courage, and who allows me to live.

Everything I have experienced the last three years has shaped who I am today. When I knew I was unable to return to my career as a music educator...something I had done for over 30 years...I thought I would crumble up and die:( Now I look at this health challenge as an added blessing in my life. My journey with scleroderma has opened up doors of ministry, advocacy, sharing my story with others, and most of all recognizing on a deeper level God's mercy and grace in my life.

October 2010 has brought sunshine and joy....
Dad is doing very well and adjusting to his new home at Green Acres.
He has made some good friends....and enjoys visits from family and friends.
He is going to church with us every Sunday, and had even invited one of his buddies, Roy, to come along too! What a delight:)

Linda and I talk almost every day and have enjoyed special times with Dad. Andrea and Elliott have also come to Cadillac....we always enjoy their visits.

Dad sold his car this month, and on November 4th their household items will be auctioned off combined with two other estates in Onekama by Ringel Real Estate and Auction. It was bittersweet as Ken and I, Linda and Don sorted through the belongings of our parents. There were some things that Dad wanted kept in the family.....but there are also LOTS of items that will be in the sale. http://www.manistee.net/bldg%20auction%2011-4-10.htm

The house is also listed for sale......we continue to pray for the right buyer.

Ken is in the middle of a bathroom remodel for Joel's bathroom. I am grateful for a handyman husband who can plumb, wire, build, and figure out ANYTHING:) He hopes to be done with it soon...then on to other projects.

We are going to see Kurt, Heidi and family on October 30th to celebrate Jonny's 4th birthday....also planning on taking a two day trip to Kenosha the first weekend in November. We are also looking forward to the entire family getting together for Dad's 87th birthday this next month. All of our kids and grand kids, as well as Linda and Don's family will be able to celebrate with us.....Dad is pretty excited:)

Linda, Andrea, and Elliott visited Grandpa

Family:)

Picture from Green Acres Octoberfest

Don and Linda's grandson Elliott Hoagland

Mom has been in heaven for 4 months now.....we miss her so much...and I still can't get past the moments that I think I can just call her on the phone and chat...I'm sure that will be with me for a long time. Just imagine the precious reunion when we are together for eternity!!

Grandson Isaac turned 7 years old:)

2010-10-09T21:43:00.000-04:00

Friday we helped our grandson Isaac celebrate his seventh birthday!!!
This precious little boy born in 2003.....is now a first grader at Heritage Christian School...loves building things, playing outside, figuring things out, singing, riding his bike, and is full of joy:)

After school on Friday I picked Isaac up and took him to "Toy Town" in Cadillac. For the past three years we have taken Isaac to the store and let him pick out something he would enjoy and Toy Town in Cadillac has been the place to go!!! http://toytowncadillac.com/ He was very excited about the visit...and after a short time...picked out a fun remote control car (water and land) and a couple of Lego things. He was so appreciative and thanked us many times!

Later that evening we went to Jason and Emily's for cupcakes and ice cream.

Great Grandpa and Isaac

Legos from Daddy and Mommy

Madeline watching the action with Great Grandpa

Ooooo.....beware of cooties!!

Grandpa Kenny and Annabelle

Emily, Julie, Grandma Judy and Grandma Karen

What a special day!!!!

Just before we ate the cupcakes, Emily read a special letter written to Isaac.

It was a moment I'll never forget~~~the love of two parents for each other~~~and the love they have for their children! This is a home filled with joy and laughter~~~totally devoted to Jesus Christ~~and centered around the teachings of God's word the Bible. There is freedom to explore the world...yet discipline and boundaries when they are needed.

Emily reading Isaac a letter for his seventh birthday

In my purse I carry a little card called "Children Live What they Learn".

I used it when I was a teacher.....and it is still applicable today. Here are just a few lines from the original:

If a child lives with criticism, he learns to condemn.

If a child lives with hostility, he learns to fight.

If a child lives with ridicule, he learns to be shy.

If a child lives with encouragement, he learns confidence.

If a child lives with praise, he learns to appreciate.

If a child lives with fairness, he learns justice.

What a good reminder for us as parents and grandparents.

How are we doing in these categories? Are we an encouragement to those precious children in our lives? What kind of examples are we to those around us? What words do they hear come from our mouths?~~~words about them~~~words about others. Believe me....they are ALL ears and they do learn what they live. May God direct our lives and paths in a pure and holy way.......May we be great examples of Christ's love for us and for others!!!

September stories~~~

2010-09-26T19:42:00.000-04:00

September has flown by.....just like about every other month in our lives.
I have always enjoyed this month of the year for several reasons such as
1)Fall is just around the corner 2)the weather is enjoyable 3) I celebrate another year of life 4)school starts:) Three of our grandsons are in school full days now. Isaac is in first grade at Cadillac Heritage Christian School, Andrew is in Kindergarten in Kenosha, and Seth is in young fives at Heritage.

I am teaching music at Heritage for 45 minutes on Friday afternoon...and enjoy having grandson Seth as a student! My career at CHS was Jr. and Sr. high....so teaching elementary has been an adventure and a joy:)

Earlier this month we had a visit from Kurt and Heidi and kids on a Saturday. The weather wasn't that great...but despite that...a fun time was had by all:)
In the past we have tried to get together in July for a camping weekend at our house....but due to schedules, things didn't work out this year. We are thankful for the times we do have....and make the most of them!

September also brought the start of our AWANA program at Rollins Christian Fellowship Church. Joel and I go every Wednesday evening....I help with song time, and Joel helps the clubbers during game time.

Joel is currently working with Michigan Works and NOC to find volunteer work and or a job. Things are slow going....but we are praying for the right opportunity and the right match for him.

Linda and Don, Ken and I continue to sort things out at the house in Onekama... it has been listed for sale per Dad's wishes. We have it listed with Ringel Real Estate and Auctions. The process has been quite serene as every time I am there...sorting/packing...my heart and mind floods with memories of Mom and moments shared with her and Dad. There are times I could just picture her walking into a room...her cheerful greeting...just so glad for the times family could visit.......We miss our Mom~~~

I am enjoying Thursdays with Grandma....just Seth and Annie now that Isaac is in school full time. Grandma Karen has Madeline....we are very thankful for these times with these precious children.

"55" years this year on September 17th.....woo hoo....had a nice relaxing day...dinner at Jason and Emily's and a new fax/printer/copier for our computer room from my hubby. I was surprised at Heritage with a gift from the children I teach music to...a lovely apple pie candle:) of course all of the kids wanted to sniff it!!

On the 18th of September we had the kickoff to our first women's "Saturday Morning out to Relax" (SMOR) at Rollins Church. Our plan is to have this ministry once a month from Sept.-Nov. and Jan.-April. It was a special morning out with praise, worship, prayer, and a short devotion. Each month we will present a specific topic pertinent to women today..and a devotional to challenge our walk with the Lord. We also want to use this as a ministry outreach to women who are seeking Christian fellowship and a time to encourage one another. Praise God I feel good enough this year to be part of this ministry team.....I am so grateful for improved health:)

September also brought the opportunity for me to lead a Patient Education Day for the Scleroderma Foundation, Michigan Chapter, in Traverse City.

The meeting went well....we had a speaker who is a hand therapist, and I had the opportunity to meet several scleroderma patients from northern Michigan.

Vanessa Prince and Me

Saturday....Sept. 25th we got together with Ken's side of the family for a cookout at Les and Jeanne's. We had a fun time....and the t-bone steaks were YUMMY! I love it when family can meet (and eat)....and cherish the memories made!

Now here we are...just four days away from welcoming in October. already the calendar is filling up.....in GOOD ways! By the grace of God I look forward to new adventures, new challenges, new opportunities to serve our Almighty God!!!

August

2010-09-06T18:16:00.000-04:00

My sister Linda and me

My sister and I had a wonderful time in Boston Mass. at the National
Scleroderma Foundation conference. We were there July 30, 31, August 1.
Our schedule was pretty packed with workshops, meetings, lunches, dinners, so we didn't do much sight seeing in our brief time there....but still had a great time.

A highlight of the conference was being the recipient of the "Messenger of Hope" award that was given to me by the National Foundation during the award banquet Saturday evening. I was honored to receive such an award and am determined to continue working as hard as I can to be an advocate for scleroderma patients.

Laura Dyas, the executive director of the Michigan chapter

and me, after the banquet.

The day I returned home from the conference, Ken took Joel to Christian Horizon's Camp Aug 1-7. The week ended up being very busy though as Ken worked on tearing a section of our roof off and replacing it with new shingles. The process took several days....but as of August 14th...the job is done and NO MORE leaks in the back hall:)

August 7th.....the day Joel came home we enjoyed a family reunion with Ken's side of the family.....the event was held at Dick and Carol Nichols..in Mesick. We had lots of fun and enjoyed seeing relatives we only see once a year. Here are some highlights~~~

Dad went with us and seemed to enjoy himself:)

The remainder of August flew by and unless I look at the calendar...I can't remember exactly what we did......well wait~~~I'll check the calendar cause it will bug me if I can't fill in the blanks!!!

On August 12th Ken and I celebrated 32 years if wedded bliss!!! We can't believe how quickly time has flown by...our marriage has been a blessing to us! We have been together for so long that we can't imagine not being "us".

There were several anniversaries in August to celebrate: Linda and Don,

Kurt and Heidi, Clint and Andrea, and Dan and Vanessa.

During August I continued to enjoy "Thursdays with Grandma" when I take care of Isaac, Seth, and Annabelle. We had lots of fun on those days...and our routine always included a visit to Great Grandpa over at Green Acres Retirement Living. Dad really liked to see the children....and always had his candy dish full "just in case" they asked!!!

We have made several trips to Onekama to begin sorting through Mom and Dad's things and preparing to sell the house. After 64 years of marriage...and 33 years in their current house....there is much sorting to be done. At times it was bittersweet as we came upon things that meant alot to us....or that sparked a particular memory or event...but "that's life"! When we used to suggest to Mom that they have a sale and get rid of a few things a few years ago....she would just smile and say...."I'll leave it to you girls someday"! Well.....now here we are. This is "someday".

August brought lots of "at home" projects too such as re-roofing the back side of the house, keeping up on the lawn, tending to the garden, and misc. this and that. We try to visit Dad at least twice a day....once in the morning to take his mail to him and around 7:00 in the evening to watch "Wheel of Fortune" and "Jeopardy"! I am getting pretty good at those two game shows:)

August 29th we took Dad over to Onekama to visit his home church, The Onekama Church of the Brethren. He was so happy to see everyone...and we plan to do that again this Fall. August ended peacefully and quietly...once again thankful for God's provisions in our lives....and for a smooth transition for our Dad as he settles in to his new living arrangements.

How could I forget one of the cutest stories from August....our little kitty visitor...who was "not" afraid of dogs!! Turned out to be the pet of a neighbor out in the country. The kitty stayed around for a couple of days...and by day three the owner stopped over and took it home! We had our Milo cat for around 14 years...and this little kitty looked so much like Milo....just for a fleeting moment we considered being the permanent home....but alas...it twas not meant to be. (and probably for the best...cat's like to roam at night about the house....our goldens prefer to sleep until we all get up!!

Here are some parting shots from the garden!!!

Doing pretty well~~

2010-07-23T17:41:00.005-04:00

I know I should be more faithful in my posts...but the days/weeks seem to be flying by!!! It's not that I don't have things on my mind to share...it's just that I don't stop long enough to write!

Between Linda and I we have been getting thank yous out to the many people who gave donations to Mom's memorial fund....which totaled slightly over $1,100 dollars. The Onekama Church of the Brethren is going to use it towards instrument repair and updating for the church organ....something Mom would have been glad to do!

Dad is doing pretty good and is settling in to his new apartment at Green Acres in Cadillac. We see him at least a couple times/day...he has had some visitors..and has many opportunities for activities with other residents. On Sunday we have picking him up to go to church at Rollins Christian Fellowship. We know he misses Mom so much....but the closeness of family softens the loneliness. Linda and Andrea and Elliiott visited about a week ago...and are looking forward to coming again:)

On the home front we continue to have summer projects here and there....Ken has a beautiful garden planted and we are eating the 'vegetables" of his labor.
So far we have enjoyed radishes, beans, zucchini, summer squash, cherry tomatoes, carrots (which still have some growing to do...but Yum..they are great). The pool is nice and warm...the yard is mowed...the roses are still blooming. I MISS MY MOM!

We have made a few trips over to Onekama, and Dad, Linda, and I are discussing the next step regarding the house and belongings. We are in no particular hurry...and we are so thankful for the peace and togetherness we feel as a family. i.e. we get along...work as a team..and have great communication:)

Joel is scheduled for another Christian Horizon's camp Aug. 1-7...we are looking forward to a quiet week:)

Linda and I are going to the National Scleroderma Foundation's conference in Boston Massachusetts July 30,31, Aug1. This is the first time I will have attended this conference...and we are truly looking forward to all it has to offer. There will be many workshops to choose from, key note speakers, and an awards banquet! I needed a good reason to get a few new clothes~! LOL

Ken and I went to Ann Arbor Friday 7/23 for my appointment with my scleroderma specialist. Everything went great!! I am still continuing to improve...no setbacks...and am so thankful that God is allowing me to enjoy a measure of good health:)

I am adding some pictures in this post from the past few weeks....enjoy:)
Check back soon...

Judy, Dad, Cousin Roger (Zelda's son)

Lunch at Green Acres

Elliott at the grand piano at Green Acres

Cook out at J and Em's with Don and Linda

I walked slightly over a mile and raised $2,000+
for the michigan Chapter of the Scleroderma Foundation

Madeline jumping into Daddy's arms
(No...grandpa didn't push her!)

4 generations!!

Dad, Linda, Andrea, Elliott

Our recent visit with Ken's side of the family
Ken, Pat,Jeanne, Les, Dave, Shelia,
Kamaria (f row)

Dad and Pastor Frances Townsend from the
Onekama Church of the Brethren
This was her visit to Dad's new apartment

Second cousins
We all got together at Uncle Les and Aunt Jeannes

Ken, Dad, and Jason checking out the back yard/woods

Great Grandpa reading a book to Annabelle

<><><><><><><><><><>

Pictures from my walk for Scleroderma

Ken and I during my walk for scleroderma

Family swim!

Madeline in the "floaty" suit

First Cousins and Mom's memorial

Roger and Judy May (Dad's nephew)
They visited from North Carolina

A Daily Journey

2010-07-07T23:16:00.001-04:00

We have so many precious friends and family who know exactly what I mean by the words "A daily journey" after you bid farewell to a loved one. There are ups, there are downs, you cry, you laugh, you just get through each day.

Mom's memorial celebration was beautiful~~~serene~~~beautiful. The kind words brought by Mom and Dad's Pastor were so personal...so loving...so true. The congregational singing lifted our hearts and spirits and was glorious!!! We were overwhelmed by the friends and family that came to the visitation, the funeral, and sent card of encouragement!! What a tremendous blessing you are to us and to Dad.

Since the memorial, Dad has come to Cadillac and is living in an apartment at Green Acres Assisted Living. Mom and Dad had discussed this option before the Lord took her home...so Dad was already thinking about these arrangements. Changes in life are so bittersweet...so difficult when many changes are thrown at someone in a short amount of time. It was heart wrenching to me the first night he stayed there. Swirling through our heads were the fact that Dad and Mom had been married for 64 years.. all they have ever known is each other...how would Dad face life without her??

Linda and I talked numerous times per day....just meeting each new situation..and trying our best to comfort Dad in this transition. Here we were...the daughters...almost taking on the role of Mom's to him. We experienced the feelings that we had when our grown children moved out of the nest~~~wanting to lead/guide/protect. Yet knowing that Dad would have to walk through this valley, adjust to life without Mom, and sort out out the many emotions and struggles that come with bidding farewell to his beloved wife.

During those days we were surrounded by our families and friends. We saw friends from our growing up years whom we hadn't seen in decades. Hugs were given....stories exchanged..comfort abounds! The flowers were beautiful~~~Mom always had flower gardens~~smelling the arrangements reminded me of her lifelong appreciation for God's beautiful world.

I have read and re-read the cards.....cherishing each one's message and the sweet people who sent them.

So here we are...almost ten days later...adjusting to life without our Mom..but not without the memories that grace our hearts!! Those will last and bring us comfort...every day..every hour...every minute.

Before Mom went to Heaven...I had scheduled to "Step out for a cure" for the Michigan Chapter of the Scleroderma Foundation. I was scheduled to walk June 26th...the day after she passed. Knowing how Mom would have encouraged me to continue on....keep my commitment...I did the walk...and not just one mile...a little over:)

Dad stayed with us Monday, Tuesday, Wednesday, and moved into Green Acres on July 1st. He is settling in well...and has had visitors already! On Thursday his phone will be hooked up...and we know he would love to hear from you:) A close friend our ours, Karen Grogan, is the activities director at Green Acres...and we are so thankful she sees our Dad every day. the care givers are wonderful....and have welcomed Dad with open arms and kindness.

Please keep Dad in your hearts and prayers! Linda and I are so thankful for the loving home we were raised in, the example of godly parents, and special love we were given. Together as sisters, along with our husbands, children, and their families....we will embrace the times ahead....experiencing the comfort of a loving God...mourning our loss....but rejoicing in the promise of eternity for those who trust in Jesus as their risen Savior and King of Kings!!!

Pictures to follow tomorrow~~~~Thank you dear friends and family!

Dale Hopkins
237 Pearl Street
Room 211
Cadillac, Michigan 49601

Our Precious Mom Entered Heaven Today

2010-06-25T21:28:00.000-04:00

Mom peacefully went to heaven in the morning of June 25th. Surrounded by Dad, Linda, Ken, Joel, me, Pastor and Nancy Lanning. We recited the 23rd Psalm around her bedside....held her beautiful hands....then Joel started singing Amazing Grace....vs. one and four. What a calmness came over the room as Mom quietly took her last breath.

To be absent from the body is to be present with the Lord!!!! What a serene moment....what a day......glorious day this has been!!!

Mom's visitation will be Sunday June 27th at the Terwilliger Funeral Home in Kaleva.
http://www.bennett-barzfuneralhome.com/index.cfm

The memorial will be at the Onekama Church of the Brethren on Monday...June 28 at 11:00 a.m. with a luncheon to follow.

Update on Dale and Lois

2010-06-16T20:05:00.001-04:00

I wanted to update you on the conditions of Dad and Mom.....so I thought I would just abbreviate it with a time line.

June 9th....Dad suffered a spell of vertigo with some chest tightness....spent one night in the hospital (Manistee)
June 10th...Dad came home

June 12th....Mom was admitted to west shore hospital in manistee with congestive heart failure.

June 15th....Dad suffered a small heart attack...was admitted to West Shore.....

June 16th...Dad transferred to Munson where he will undergo a heart cath Thursday at 12:30

June 16th....after 4 days in the hospital...Mom is improving very slowly....still very tired

Between Linda (my sister), Andrea (my niece) and me we are with Dad and Mom.

Our hopes are that Dad will be released from Munson on Friday...and that Mom will strengthen daily.

We are taking each day as it comes....and planning accordingly. Thank you for the many prayers and your support.

Congratulations to Joel as he graduates from WMISD!!

2010-06-12T11:26:00.001-04:00

Joel graduated from Wexford Missaukee ISD on Thursday after being a student there since 2004. We are very excited for Joel as he begins a new chapter in his life!!

Plans now are to volunteer at Goodwill, and set up a program with Michigan Rehab Services. School is all that Joel has ever known...so things may be a little confusing at first for him, but if we get him involved in a routine....we believe he will do just fine!

We attended the ceremony at the ISD on Thursday...and had a little get together for him at our home Friday evening. I have attached lots of pics from the day:) Joel sang a solo "Lean On Me" for his graduation....helped out by brother Jason. It was really sweet! We are so thankful for the experience he had at WMISD and for all of the amazing teachers who worked with Joel to help him get ready for "life" in general!!

Please support me as I "Step Out For A Cure"!!

2010-06-05T21:32:00.000-04:00

Dearest Friends, Family and Former Students,

In June of 2007 I was diagnosed with an incurable disease called "Scleroderma". This disease affected my skin, the largest organ in our bodies, and hardened my hands, arms, feet, and legs. Due to the disease I was no longer able to teach choral music at Cadillac Area Public Schools....and sadly had to retire in 2009 after 31+ years of teaching

Scleroderma crippled my hands, hardened my skin, took my career, but didn't steal my joy!!! . Actually it brought out a strong determination in my life to 'beat" this disease, advocate for others who are diagnosed, and assist in raising funds for patient education and awareness.

I had never heard of scleroderma until I was diagnosed with it. All I knew was there was no known cause, and no known cure.

The last three years of my life have been a tremendous adjustment for my family and myself. I am so thankful for their love and support!! In the past three years I have experienced many difficulties but my faith and determination remains strong!!

When I became ill I reached out to the Michigan Chapter of the Scleroderma Foundation, and they reached back to me!! Through literature, support groups, and a constant listening ear....they have made a difference in my life and the lives of others! Because of the foundation I have been able to meet many others afflicted with this disease , no two of us are alike!

I am asking you to support me as I "Step out " in finding a cure for scleroderma. On June 26th I am going to attempt to walk one mile!! Since scleroderma hardened my legs and feet....walking for the past three years has been very painful. It has only been in the last few months that I have gained mobility in my feet and legs and can walk more comfortably.

I want so much to be able to help make others aware of this awful disease. I have recently recorded a dvd entitled "Living With Scleroderma With a Smile" which will be on you-tube, Ken and I went to Washington DC with the executive director of the Michigan Chapter to rally support for two bills, and I am visiting different chapters throughout Michigan during their patient education day events. These trips totally whip me out....but in my heart...it is worth every minute if I can make a difference in someone else's life:)

I am asking you to "Please" support me in this endeavor!! Any amount will be greatly appreciated!! Every step that I take as I attempt to walk one mile will be for those who are suffering from this incurable disease!!! The sacrifice you make financially will bring hope and promise to so many others just like me!! I have set my fundraising target at $5,000....but am hopeful I will exceed that amount for the foundation!!

Currently Ken and I have over 1,450 friends on Facebook:) If each one of them gave $5.00, I would exceed my target goal!! I was thinking of things that cost $5.00 and came up with a massive list!! Just think...if you gave up 5 candy bars, 2 bags of chips, a rental movie, a caramel mocha, two gallons of gas, etc. You could help me reach my goal!!

PLEASE consider sponsoring me today....and watch with me as the $ grows daily until June 26th when I "Step Out For A Cure"!!! Thank you so much...and may God bless your life as you make a difference!!

http://www.firstgiving.com/judynicholschoirteacher

Follow the link above to give online:)

If you prefer to send a check please make it out to:

Michigan Chapter of the Scleroderma Foundation

Send to Judy Nichols

1147 S. 37 Road

Cadillac, Michigan 49601

Oh where oh where did our little May go?

2010-05-26T20:17:00.001-04:00

If I had a dollar for every time I thought about updating our blog...I would have enough to treat most of you to Dairy Queen!!! Sounds good doesn't it? Hot fudge sundae...small....extra chocolate for me!! Or maybe just a dilly bar:)

I have been so happy...and so busy!!! Mother's Day was fun, I am watching our grandkids once a week, teaching at Heritage 1/2 per week, enjoying watching Ken re-do our front flower beds, had a great time in GR going to see Christian speaker/author Beth Moore last weekend. We also spent time with Kurt, Heidi, and kids who were in GR. In addition we are singing in choir at our church every Sunday, and I even accompanied them on Mother's Day. I still use only 2-3 fingers on the rh and 1-2 on the lh~~~But it still sounds pretty good...and my heart is jumping with joy that I can serve God this way!

The CHS choirs had their spring concert a week or so ago,,,I attended it and really had a nice time! I can finally sit in the audience without feeling the grieving of not being the director. I am, just happy for the kids that are singing and loving what they do!!
There are just a few left that were students of mine...most have graduated.

Saturday evening was a first for me in three years!! Ken and I took a walk to the back of our property and back! I was elated that my feet/legs could walk that distance...to me another answer to prayer...and another hurdle that God has brought me through:)

We have made a visits to Onekama...Mom is improving slowly. she has been able to get out a little bit...mostly for DR. appointments,,,but we are hoping they can make it over here sometime in June! Speaking of June....My sister is officially retiring from 37 years of teaching for the Alma Public Schools. I am so excited about this and look forward to spending more time with her. In fact...Linda and I are going to Boston, Mass. July 30-Aug.1st for the National Scleroderma Foundation Conference. There will be many workshops and speakers that will share with us updates and current research. We are really looking forward to attending this!

Our grandkids are growing too fast~~~and are so precious! I have started keeping a booklet of funny things they say to me and ask me!! There is never a dull moment...and we love being with them!! We love being with our sons and their wives too~~~It's just that the g-kids are so adorable!

Joel graduates from WMISD on June 10th...and will no longer be a student! Out into the real world he must go! (while still living at home with Dad and Mom) He has been prepared well though by job coaches and has several places he volunteers at. He has a solid chance at working for Arby's a few hours per week....cleaning tables/taking trays/etc. He is looking forward to attending Christian Horizon's camp this summer~~and so are we:)

Well....enough rambling, enjoy the pictures....

Till we meet again:)

This and That~~~~and a Few More Things:)

2010-05-06T22:15:00.000-04:00

Joel's surgery went very well on April 23rd. He actually just got his staples removed on Wednesday......14 of them....and it looks like he will still have restricted use of the wrist for the next month or so. He is a real trooper though, and the healing seems to be going quite well. I don't want to gross anybody out....but here is the final product!

Dr. Bizzigotti did a super job and was really encouraging to Joel.

Our Mom Lois is home recovering from a medical procedure that is supposed to stop the plural effusion problem she has suffered for the past several months. The 6 day hospital stay was very difficult and really wore her out....but slowly she is improving and gaining her physical strength daily. Dad is her main caregiver, along with the occasional help of visiting nurse, and home health care workers. Linda and I try to get over to Onekama as much as possible. We appreciate your prayers and encouragement . While visiting Mom at West Shore Hospital in Manistee, I saw a close friend from my high school days in Onekama, Sandy (Clouse) Nelson. Sandy and I have been friends forever!!! We always enjoy catching up on life....and are looking forward to getting together this summer some time.

Thursday, April 29th was a HUGE day for me. For the first time in over three years I drove all by myself to Grand Rapids!!! I was a little stiff....but very excited about this accomplishment! I went there to attend a "Meet and greet" sponsored by the Michigan Chapter of the Scleroderma Foundation. Another joy to the trip was that my roommate from college, Betsy Kindig Kettle, was able to take a day off from teaching and join me for the meet and greet. We took full advantage of the day by going first to lunch at Applebees. then over to the event.

Above is a group picture of some of us that attended.

Betsy is to the right of me in the purple shirt.

We had a wonderful visit...plus really enjoyed meeting

Scleroderma patients and advocates from the GR area.

Below is a picture of me with Laura Dyas, the Executive of the Michigan Chapter.

Ken and I traveled to Washington DC with Laura last October.

On May 1st I had the opportunity to speak to a group of ladies at the Jennings Community Church...close to Lake City. The pastor of that church is Pastor Larry Shetenhelm....his wife is Kathy...many if you know them:) The theme for the evening was "Aprons". All of the ladies...and younger girls wore aprons...so many beautiful aprons with many unique stories and fascinating history behind them. Me....I wore a borrowed, yet adorable, apron from Emily. (our daughter-in-law) I am embarrased to admit that I do not own an apron of my own. Yet after talking with Mom a few days later, I found out that I have an apron in Onekama...one from my childhood!!

I entitled my devotion "The Woman Behind the Apron". I wish I could share the whole thing with you....but just know God provided the words..and I provided the outline. He even gave me the strength to do sing special music AND accompany myself. I can't tell you how much joy it brings to my heart that I may serve the Lord by speaking to various groups. I pray for many opportunities and doors to open to glorify God in this capacity as I continue to strengthen physically.

Wednesday evening was our last official AWANA night at Rollins. Next Wednesday is the "Fairmont Fair". Jason and I have been leading praise and worship music with the club this year. We have truly enkoyed working with the children and seeing the clubbers grow spiritually (and musically:) On Friday afternoons I have been teaching music to young fives and kindergarten at Heritage Christian School. I have been teaching for the last 6 weeks for 30 minutes a week. I LOVE it....and I LOVE the children. It is much different from teaching almost 200 kids per day....but I believe God is using me in a special way...and the children are so eager to learn.

Plus....I have a grandson in class!!! That is so much fun!!

On Thursdays I am continuing to take care of Isaac and Annie while Emily works at Wexford Jewelry. Grandma Karen takes care of Madeline on Thursdays at her house, and Seth is at pre-school.

Kurt, Heidi, and children are doing well in Kenosha, Wisconsin. Although we have only visited once....we talk on the phone and "skype"....which is video chatting over the internet!! We are so thankful for today's technology and are looking forward to our next visit!

Here are some pictures from AWANA awards night.

And last....but not least....our pony "Sugar Babe" arrived at our farm Wednesday evening. She spent the winter in South Boardman at our friend's The Brittons! We were so excited to see her again....and she adjusted very quickly to her home as if she had never left!! More to follow....and thanks for reading this rather lengthy update.

Joel..........A broken wrist....Surgery on Friday

2010-04-22T21:07:00.000-04:00

Saturday evening Joel was drving around out back on our rhino (4 x 4 utility)....
talking on his cell phone at the same time ):.......and bam....he hit a tree....
he must have braced himself while holding the wheel in his left hand...and the impact
of hitting the tree broke his wrist:(

He will have surgery on Friday morning (April 23rd) Dr. Bizzigotti will perform the repair....which is scheduled for 7:40 a.m. Yikes....we have to be at the hospital by 6:15 a.m. We are thankful he wasn't hurt any worse than he was. A wrist will heal quicker than a head!!! Joel felt very bad about the accident and kept apologizing for talking and driving....and told us how much he loved us!!! LOL...probably trying to soften the consequences of driving and talking! Needless to say....no more 4 x 4 and phone calls!!!

Mom is back in the hospital in West Shore in Manistee having liquid drained from her lung again. This time she will also have a procedure done that should repair the leaky spot....but will require a longer hispital stay. Please continue to pray for her as she is there.

Today I had the opportunity to speak to two Civics classes at Cadillac Jr. High School about my trip to Washington last October, and the status of the two bills, S~1545 and H.R. 2408. I really enjoyed the students....and look forward to going back again in the future. I have lots more to share...but if I don't get a good night's rest before Joel's surgery....I'll be GRUMPY in the morning!!! LOL

The Past Two Weeks....Emily's b-day and our trip to Kenosha

2010-04-17T09:29:00.000-04:00

The past two weeks have FLOWN by!!! We have celebrated our daughter-in-law Emily's 29th birthday,taken a trip to Kenosha, Wisconsin to see Kurt, Heidi, and kids....taken care of grandchildren on Thursdays ,visited with my sister Linda, neice Andrea, and great nephew Eliott, and chauffered Joel here and there every day. I am truly enjoying the warmer weather and look forward to summer:)

I just finished hand therapy a week ago at Mercy Rehab. It went very well, and I have seen alot of progress in mobility. My skin continues to soften, even though my hands are contratced. Insurance will only cover the therapy if my hands and fingers show a marked improvement. I am grateful for the improvements I have made and count every day a blessing! I am still receiving physical therapy on my legs and knees...and walking with greater ease. One of my goals is to be able to climb steps....but that may take awhile:) In my spare time (lol) I have been working on a dvd entitled "Living with scleroderma with a smile". The 14 minute dvd was filmed and edited by the Cadillac High School tv production class. We finished the project March 22 and very soon it will be posted on the website of the Michigan Chapter of the Scleroderma Foundation. The purpose of the dvd is to provide encouragement to those who suffer with scleroderma and other illnesses. It is also being shown at patient education days throughout the state at foundation events. It was exciting filming the dvd and I am so thankful for those who helped produce it!!

We had a wonderful time on our recent visit to Kenosha to see Kurt, Heidi, and our precious grandkids.

While we were there we took a tour of the "Jelly Belly" warehouse, visited the GFS distrubution center where Kurt works, and went to church with them at the Racine Bible Church. It was so good to spend time with them and see their towne house, visit, and play with the children. The trip over took us around 5 1/2 hours. We got there Friday evening....and got home around 6:30 Sunday evening. Joel stayed home this time but we hope he will make a visit with us in the future. Thanks again to Jonathan Cooper and Jason and Emily for taking care of him in our absence. We look forward to our next visit, and in the meantime we will visit on the phone, skype, and email!!! Enjoy the pictures below:) Until my next blog!!!

P.S. I didn't get pictures of Emily on her birthday....but we did have a fun time taking her out to dinner!

P.S.S. I forgot to tell you that I am teaching music at Heritage Christian School once a week to kindergarten and young fives. I LOVE IT!!! and praise God for opening the door for this opportunity. One of the benefits to the class is that I get to teach our grandson Isaac!! Next year I'll teach Seth:)

Inside the Jelly Belly store:) We came home with over 20 lbs of jb's!!!

At the entrance of the tour

On the train inside the warehouse

(above) The outside of the new GFS distribution center in Kenosha Wisconsin

Below is the front of the building

Kurt and I in front of the company sign

The facility is huge and state of the art!!! We are so thankful to God for the job he has

provided Kurt and the responsibilities He has given him.

Sunday after church with Andrew, Jon, Kirsten and Rachelle

Linda, Andrea, and Elliott visited us over spring break. We went out to Jason and Emily's for lunch and really enjoyed our time together! Elliott had a wonderful time playing with his second cousins:)

Elliot and Madeline (six months apart) had fun playing outside!

My sister Linda with her grandson Elliott Hoagland

Happy 27th Birthday to our son Kurt

2010-04-03T22:11:00.000-04:00

I'll never forget the day Kurt was born~~~~Easter Sunday, April 3rd, 1983! Dr. Ziter was our family doctor and he drove all the way back from a vacation in Canada to deliver Kurt. It was snowing on the day Kurtis Dale came into this world....Ken still remembers the snow on the grass:) Jason was only 22 months at the time, but was so excited to have a little brother:) I remember him petting and patting his head in the hospital...soooo cute!

It seems like the last 27 years have slipped past us very quickly...yet we have made wonderful memories with Kurt! Now here he is, 27, married ,father of 4, and as sweet and loving as ever.

We are excited to travel to Kenosha next week to spend time with Kurt, Heidi, and our grandchildren!
God has blessed them through the sale of their house, the provision of Kurt's job in Kenosha, and safety in the move! Thank you all for the many prayers and words of encouragrement throughout their journey!!

Happy Birthday to Kurt.....what a great son you are...and we love you with all of our hearts!

Celebrated Joel's 25th Birthday on March 17!!!

2010-03-18T09:30:00.000-04:00

I can't believe our youngest son just turned 25!!! It seems just like yesterday I was running around after three toddlers......now they are all grown up!!

Joel had a very good day on his birthday....lots of well wishers on Facebook, cards in the mail, .plus he worked at Arby's, and helped out at AWANA in the evening. He had a pleasant surprise as the entire Sparkey's group sang Happy Birthday to him!! He loved it! Friday night we are planning on taking him out for a birthday dinner followd by cake over at Jason and Emily's.

We love you Joel....and are so pleased with the young man you are becoming!!!

A great time!!!

2010-03-11T20:44:00.000-05:00

We were in GR on Saturday to visit Kurt/Heidi, Andrew, Jon, Kirsten and Rachelle. And...to watch Joel play in a Special Olympics basketball tournament.

Kurt and Heidi moved to Kenosha, Wisconsin last Sunday where Kurt started his new position with GFS on Monday, March 8th.

This was their last weekend in Michigan:( We are going to miss having them only 90 miles away....but are looking forward to the new adventures and memories we will make visiting them at their new home!

Andrew at lunch:)

He asked the waitress why there were no sprinklers in the ceiling!! He doesn't miss a beat!

Kurt and the kids came to watch Uncle Joel play basketball:)
They would clap when he made a basket and holler "Yay Uncle Joel

Johnny....always so sweet!

The kids by the fish tank

Grandpa and Kirsten

We went over to Ron and Carol's after the game. The girls had a blast as Daddy played airplane with them using a plastic bucket/pan. They giggled so hard!!

Below are some pictures from The Area 32 Bobcat's team!!!

We were so proud of their team! The all played very well...and have improved so much this year! They won the first game and lost the second...but they played with great sportsmanship!!!!

Happy "8th" Anniversary to Jason and Emily

2010-03-02T19:54:00.002-05:00

Today, our first born son Jason and his precious wife Emily celebrated their "eighth" anniversary!!! What a joy it has been to watch them over the years!!!

The two met around 15 years ago and now here they are in 2010.....celebrating 8 years of marriage....best friends.....wonderful parents to four beautiful children....and committed Christians who faithfully serve the Lord with their gifts and talents:)

We are so thankful for Jason and Emily and the testimony they are to all of us!!! It has been such a joy to us as parents to see them grow in their marriage, grow as children of God, and grow as a family:) Isaac, Seth, Annabelle, and Madeline!!!

Happy Anniversary to J and Em~~~~~We love you:)

A Turn In the Road

2010-02-19T19:12:00.006-05:00

Today (Feb 19th) I went to U of M for my routine "Scleroderma" check up. My first appointment was a pulmonary function test and the second was an appointment with Dr. Elena Schiopu http://www.med.umich.edu/scleroderma/faculty/index.htm#schiopu who is my new specialist since Dr. Seibold took a new position as Professor and Chief of the Division of Rheumatology at the University of Connecticut Health Center.

Dr. Schiopu is a delightful woman who had such a sweet spirit about her. Dr. Seibold had already filled her in about my case (an my personality.LOL..) so she already knew a little about me as she entered the exam room. After reviewing my pft, blood work, and skin, Dr. Shiopu announced that my condition was experiencing a "turn in the road" and along with that, she felt I no longer needed to be on an immune suppressant!!!

I was so excited with that news.....that I cried!! Ken and I just looked at each other and smiled!!! Through my tears I said that God was in control and I knew that every day was a gift from Him! She said that I would be able to go off the meds immediately with no side effects....
Wow.....NO more monthly blood work!!! Yay!!

I can't say that my scleroderma will be completely gone forever....but I can say...it is at a turn in the road.....my skin is improving....I am continuing to have hand therapy and seeing improvements there....and on Monday I will have an evaluation to begin physical therapy for my legs so I might improve my walking/etc. Currently I still have great difficulty getting up from a sitting position and climbing stairs. This will be my next challenge....but I welcome it!!!

After nearly one thousand and ten days since my original symptoms.....I praise God for giving me Hope.....Patience.....and Joy!! I still have alot of life to live.....and I am grateful for the opportunities I have had since my illness, my disability, and my retirement.

My new projects have included editing the Area 32 Special Olympics newsletter, developing and filming a video for the Michigan Chapter of the Scleroderma Foundation to be shown at patient education days, and of course "Thursdays" with Grandma!!( or whatever day of the week it turns out to be)

I'd like to rent a billboard that says "never give up"!!
If you suffer in life.....seek the joy in your situation...it is there....Don't give up....let people help you in your need....don't isolate yourself....educate yourself.....and did I mention:) "Don't give up!!!" Cry when you must....laugh when you can...

For me....God is my strength....my refuge! His word, the Bible, is my road map and the Holy Spirit my comfort. My life is far from perfect...but my joy is close to full!!!!

Rick's Pick's http://rickspicksnyc.com/

2010-02-11T14:51:00.019-05:00

We do not usually order food online...so when we do....I like to share with you what we find, how it was, and a little bit about the company we ordered from. Check it out!!

Yummy "Bees n Beez"

When I first tasted these they had a little 'tang" to them!!
But after the second bite, I didn't want to stop eating them!!!! Very good!!!

These are the three items we ordered:

Phat Beets http://rickspicksnyc.com/pickles/phat_beets

The People's Pickle http://rickspicksnyc.com/pickles/the_peoples_pickle

(We had these with supper last night and our grandkids ages 6,4, and 2 LOVED the taste!
In fact....they liked it so much they asked for more!!)

Bee "n" beez http://rickspicksnyc.com/pickles/bee_n_beez

Why did we order "Rick's Picks"? Read our story below:)

Recently as we were watching the Fox news with Shepard Smith we saw an interesting segment about a business called "Rick's Pick's". Now being pickle lovers, gardeners, and connoisseurs of "tasty" stuff....this segment caught our attention:) We viewed the segment with great interest and truly admired the story behind the pickles!!! Click here to watch the segment: http://blog.rickspicksnyc.com/?p=485

Within minutes of the broadcast Ken and I searched the internet for ricks picks~~~ http://rickspicksnyc.com/. We perused the many choices and settled on ordering three of their products : Phat Beets aromatic pickled beets (my choice...I LOVE pickled beets:) The People's Pickle, which are crunchy garlic dill pickles, and Bee "n" Beez which are sliced bread and butter pickles. We were very pleased with the product which shipped within 1-3 days and was very well packed and protected.

We were happy to support a business like 'rick's picks" after listening to their story! We appreciate hard working people that don't "give up" just because life changes!!! All of us have burdens, trials, disappointments, and sharp curves in the road to negotiate!!! It's what we do with those trials that counts!!!! It builds character......makes us strong.....keeps us moving forward! May God bless this family business....who dared to dream big!!

When these three jars are empty...this family in Cadillac, Michigan will order again:)

Happy "27th" Birthday to Heidi

2010-02-05T10:35:00.008-05:00

Mommy to four precious children:)

Our daughter-in-law Heidi turned 27 today!!!

Happy Birthday to you Heidi!!!!

We want you to know how special you are to our entire family:) And.....what a great Mommy you are and a precious wife to our son Kurt:)

What a celebration these days have been!!! Kurt and Heidi's house sold:) Andrew invited Jesus into his heart on February 1st:) Kurt starts training for his new job with GFS:) and they are in the midst of looking for housing near Kenosha where they will be living:)

Praise God for the wonderful answers to prayer....and for the joy He has given to Kurt and Heidi and their family! Once again.....Happy Birthday Heidi~~~~~With all of our love....K and J

Heidi with niece Madeline

Funny....but also a good lesson!

2010-01-29T18:35:00.004-05:00

Today our golden retriever Zoey put her head in a garbage can......and when she pulled it out..the lid stuck around her neck! Now because I couldn't pull it off very well...she had to leave it there until Ken came home for lunch. All in all it remained there for almost three hours.

During those three hours I watched her try to maneuver from here and there occasionally bumping into things, she wasn't very happy either....kind of a sad look in her eyes and she laid at my feet. I sat there thinking of this contraption around her neck and the burden it brought her....but there was nothing she could do about it....until her Master came home:)

It reminded me of the burden of sin that hangs around our necks like a big contraption. Not only our necks....but our whole being!!! I thought of things like alcohol, drugs, lying, stealing, cheating, violence, and the list goes on. All of these things remind me of garbage...and we stick our noses(lives) into the can....sometimes it gets hooked around our necks....and we can't flee it until the Master frees us.

Jesus is the one who paid the price for our sins....who by his death and resurrection gave us a way to become free from the burdens that weigh us down!! When we ask.....He will remove the garbage cans....and lids.....from our lives and forgive us from our sins. In obedience and out of love for our Savior......and our Father God....we must learn to keep our heads (and lives) out of the garbage cans of life!!

I Love Surprises!!

2010-01-22T20:29:00.005-05:00

I was able to pull off a birthday surprise on Ken today!!! Thanks to his boss David, and our sons and daughter-in-laws!! The plan was for everyone to arrive around 1:00....and to figure out a way to keep Ken home after lunch:) Thanks David for helping me out with that!!!

Everything went smoothly...and Ken was very surprised when the caravan pulled in!!! I even kept the info from Joel....in fear that he couldn't keep a secret!! He was as shocked as Ken.

The guys enjoyed target shooting out back with their hand guns...and us girls visited inside while the kids did an arts and crafts project. Heidi and Emily helped me with the extras like snacks and dessert, and we ordered pizza! I just loved watching the day unfold the way it did:)

Celebrating my Husband....the Love of my Life!

2010-01-21T19:50:00.004-05:00

On January 22 Ken turns 53 years old-

I don't know quite where to begin....but let me share this...Ken to me is the most caring, loving, kind, generous, handsomest man in the world!!!

We have shared thirty one years of marriage together, raised three amazing sons, and experienced life with joy as a family. I don't know what I would have done without Ken's love, encouragement, and faithfulness during the difficult days after my diagnosis.

He has taken me to the doctors, helped me with everything, stood by me through ALL of my fears, and prayed for me with his whole heart. Ken makes me laugh, keeps me going, drys my tears, and builds me up in character EVERY day! I wouldn't be me without him~~~~we are a team~~~servants together~~~~happy to share our days, months, and years side by side.

I praise God for the blessing of a godly husband......a man of integrity......the leader of our home...a wonderful example of a father.

I love watching Ken interact with our grandchildren!!! Especially the little girls since we didn't raise daughters:) I am excited to witness these relationships with the kids as they grow up...waiting to see the special times unfold.....enjoying God's plan for our lives until He comes or calls us home.

Updates From Baptist Haiti Mission

2010-01-15T09:22:00.002-05:00

For those of you who would like to read updates regarding the recent devastation in Haiti....here is link for the Baptist Haiti Mission who is posting up to date news and prayer needs: http://www.bhm.org/bhm/lang-en/haiti-earthquake-news-and-updates.html

Happy Fifth Birthday Andrew Nichols!!!

2010-01-12T11:22:00.004-05:00

Happy Birthday to our grandson Andrew!!

What a precious little boy you are and we can't believe you are "five" years old already!

Andrew is very active:) He goes to preschool three times a week, he is a Cubbie in the AWANA club, and is very helpful with his brother Jonathan and twin sisters Kirsten and Rachelle!!!

In his five years he has lived in Wyoming, Michigan, and will soon be moving to Wisconsin.

We treasure the times we can spend with him...and look forward to watching him grow up and to see what special plans the Lord has for him!!

Happy 85th Birthday To Mom

2010-01-09T19:45:00.003-05:00

Today we went to Onekama and celebrated Mom's 85th birthday!

It was a quiet day in the house....but she received many beautiful cards and got phone calls from family and friends. Given her current health status....not having too many people around at one time is probably better. Next weekend Linda and Don will visit. We are trying our best to have one of us there every weekend. Their friends from the Church of the Brethren have been WONDERFUL!!! We are so thankful for everything they are doing for Mom and Dad.

I thought I would share a picture of the many cards she received...and the beautiful cake that our daughter-in-law Emily made. It was made from scratch....as was the frosting:) I wish could share a piece with you through this computer....but oh well!! LOL Trust me.....it was yummy!

Hand Therapy......No pain No gain

2010-01-06T16:21:00.006-05:00

Once again I am back in hand therapy for my contracted hands and am excited to report that I am showing "slight" improvement! Now by "slight" I just mean baby steps.....but I'll take it!!!

My therapy is being done at Mercy Rehab Services....next to Mercy Hospital and my primary therapist is Ilia.

The therapy itself involves pulling, stretching, pulling, pushing, more stretching.....and at times when certain nerves are involved it can REALLY hurt! But like my title of the blog says....."No pain...No gain". I am learning to endure it....keep my mind off from it when it's being done....and just stay focused on tolerating the manipulation so that I can improve!

It actually is quite alot like parenting:) When your kids are growing up there is alot of pulling, pushing, (shoving), stretching....and occasional manipulation....but always staying focused on God's direction for our lives and seeking to improve ourselves for His glory!

My scleroderma is stable and it does not appear to be worsening! I continue to do what my body tolerates....and get lots of rest. In February I will be featured on the cover of the "Scerloderma Voice" magazine. Woo Hoo.....I would have never believed I could be a "Cover Girl"!! LOL....not your typical one that's for sure! In addition there will be an article about my journey with scleroderma and my personal story on how I am managing this life change. I was very excited about this opportunity....and look forward to sharing the issue with you:)

A Wonderful Start to 2010

2010-01-03T10:35:00.005-05:00

On New Year's Day we had the joy of getting together at our home with ALL of Ken's brothers and sisters. We see each other quite often during the course of the year.....but normally we are missing one or two.

Pat and Dave "Winter" in Florida...but we were so excited they could be here this new year! Tom and Deb live in Kalamazoo, Dick and Carol, Les and Jeanne are all close to Mesick...and you know where Ken and I live!!!.

Pictured to the left are all of us "Sister-in-laws".

We feel so blessed to not only be related....but to share a deep friendship...and the privilege of being "sister's in Christ". We all get along so well...and count it a joy to be able to call on each other with any prayer needs we may have.

This is the "whole" crew!!

The last time we were all together was for our niece Elizabeth's wedding in June 2009.

During our visit on January 1st, we watched some old movies of the family from the 1960's! It was fun reminiscing and especially seeing Keith and Wanda.

The "original" 25 cents.

Five Nichols.....get it???

We were joined during the day be Tom and Deb's daughter Emily and her two daughters, our son Joel, and our son Jason(Emily) and their four children.

As always, we had lots to eat, and treasured every moment we could spend together!

I praise God for the blessing of family!
I thank Him for the love and friendship our
extended family enjoys......and look forward to many more special times here on Earth.

Last time I counted, if we were ever all to be together with our kids and their families...there would be "54" of us!! But I am hopeful we can do that sometime in 2010!!

2009-12-30T11:48:00.006-05:00

Last Saturday we had a fun time visiting with Ken's sister and brother-in-law (Jeanne and Les) and also his cousin Rebecca and Darryl. Rebecca is the daughter of Rufus Yount who is Wanda's brother,

I love this time of year because we have so many special moments with family! New Year's Day we will be getting together at our home with all of Ken's brothers and sisters and their spouses!!! It's been quite a while since we were ALL at the same place at the same time!!!

Mom is home now and slowly recuperating....Linda was there for a couple of days and I will be visiting Wednesday afternoon. We are very thankful for the care she is getting and the home health nurses that visit!

Update on Lois

2009-12-28T22:22:00.002-05:00

Mom is home from the hospital. She had a procedure done on Sunday night to drain about 1 liter of fluid from her lung. She is pretty exhausted from the whole ordeal.
My sister Linda is there helping out....I am so thankful she could be there!!!!

Evidently when Mom had chemotherapy and radiation it caused scarring in the lungs.
This....and complications of congestive heart failure are linked to the lungs being compromised.

Currently she is on oxygen to help her breathe...and she has visiting nurses and physical therapists who come to their house. Dad does as much as he can to help, and they have
many friends who stop over with meals.

A card or short phone call is always appreciated!

Onekama on Christmas Day

2009-12-27T19:52:00.004-05:00

Christmas Day we went to Onekama to spend time with my folks and my sister Linda and her family. It was a precious visit....kind of quiet...and very enjoyable.

We had a great dinner that was prepared Dad and Mom's very good friend Donna (Erickson) Schimke. As always...we had plenty to eat....and had lots of yummy desserts. We had fun watching Dad open their new coffee maker! Their old coffee maker used to take over an hour!!!!!LOL....so they really appreciated the new one!!! Fast coffee!!! Woo Hoo~!

Sunday was not so good of a day.....Mom ended up having to go to the hospital because of difficulty breathing. Once again she is having problems with fluid in her lungs. This is associated with congestive heart failure.....and hopefully her doctor will be able to resolve the issue. Tonight (Sunday) she had a procedure done to drain the fluid...around 1 liter...from her lung. She is resting comfortably now but they did leave a drain in this time to "just make sure".

Mom is using oxygen at the present time to assist her breathing....it has proven to be helpful.

My sister Linda was able to be with our parents today and was at the hospital in time to be there for Mom's procedure. I am so grateful for that! We will go up Monday if needed....

Linda will call with an update in the morning....so I'll post more later.

Tonight I wrestle with changes in life......the frailty of life......getting older....declining health...

I have a hard time watching a strong woman like our Mom struggle with these turn of events....the compression fractures....her breathing....the fluid build up...

Our Dad is completely by her side through it all!!! They are inseparable.....He even insisted on taking her to the hospital this morning to make sure she got there okay!! Now we weren't so sure if that was such a good idea or not.....but today the roads were fine. I suppose it's hard to tell an 86 year old man when to and when not to drive!!!

Thank you once again for your love and prayers on behalf of our family.....

Love to you all....

MERRY CHRISTMAS!!!!!!

2009-12-25T09:35:00.002-05:00

Wishing you all a Merry Christmas and a very special day!!!

Happy Second Birthday to Kirsten and Rachelle!!!

2009-12-24T12:55:00.006-05:00

Christmas Eve two years ago.....two beautiful girls were born to Kurt and Heidi!!

Today they celebrate their second birthday.....and oh how they've grown!

Walking, Running, Talking, Humming

Happy in every way~~~~

Laughing, climbing, sometimes whining,

Always ready to play.

In two short years they've learned alot

they bring us so much joy

at two years old they pick up their clothes

and put away their toys:)

The blessing they have been to us

was there right from the start

We pray this year's a special one

we love you with all of our hearts!!

Happy Christmas Eve Birthdays

to Kirsten Lynn and Rachelle Ann!!!!

Christmas Day is Coming:)

2009-12-22T19:51:00.012-05:00

Our precious Grandchildren......Ages 1 to 6

We had a wonderful time last Saturday in Jenison as we celebrated Christmas with our immediate family, The day was filled with laughter, giggles, and the joyful anticipation as the children opened their gifts!!

We aren't the typical family when it comes to gift giving...a couple of years ago we all decided that we would gift the children at Christmas...and simply enjoy the fellowship of each other without all of the "buying" pressures....and $spending that comes along with it. There are 15 of us now....and we all enjoy the basics of life....a roof over our heads...clothes on our back...and food to eat. Our joy is found in being together...knowing that we are family...and that we can count on each other in the best of times and the worst of times.

I probably took over 100 pictures on Saturday...but have only added a few today. I decided to share a life experience instead.....the story you'll find at the end of this post.

We pray that you are your family will celebrate this Christmas "stress free"! That you enjoy and appreciate the "simple gifts" of life....that you make wonderful memories together!!

Don't let a day go by that you don't make an effort to make a difference in some one's life!!!! Don't miss the opportunity to be a blessing to those who surround you!

Merry Christmas!!

Mom and sons...(sorry Joel was a little "Scrooge")

Kurt, me, Jason

Emily, me, Heidi

Father and sons.......Jason is imitating Joel's pouty lip!!

Something to think about.....

On Monday, December 21st....just four days before Christmas I visited Cadillac Jr. High School where I shared the experiences of our trip to Washington with students from two Civics classes.

As I entered the first class....I had this calm feeling as if I had done this a hundred times.

The classroom teacher was in the room and the students were making their way through the door and to their assigned seats.

I studied each face as they entered the room and watched them interact with each other as they prepared for class. Some were quiet and reserved, others were loud and rowdy, and a handful of them came up and greeted me.

One particular young man however caught my attention as he settled into his seat, slipped his hand below his desk and secretly (or so he thought) began texting with his cell phone. Now I know from experience that cell phones are not to be used in class...and during my years as an educator I became very good at spotting them....no matter how "sneaky" the user was.

I quietly took a seat while the teacher took attendance and had students hand in their assignments from the day before. The young man seemed oblivious to what she was saying..continued his "secret" texting until she began her introduction of the "Guest Speaker" for the day....which was yours truly. As soon as I was introduced the young man walked over to his teacher asking for permission to leave the room for a moment, I suppose to get a drink of water or use the bathroom.

Instinctively I thought to myself, "he is looking for a way out and he has no interest in hearing what this guest speaker has to say". Curiously I watched as he left the room, smiled at the students, thanked the teacher for the introduction, and happily began to share my story.

The students were so attentive and seemed to hang on my every word. I don't know if it was because I had anything profound to say....rather I think it was my hard skin and contracted fingers....and the fact that I had an unusual disease that perked their curiosity. Lots of good questions were asked....to which I hoped I had an equally appropriate answer! The time was going by quickly.......in fact to my amazement, I realized that 25 minutes had passed by before our young man returned from his "out of class" adventure.

He looked a little agitated, as if he were waiting a response from his teacher....or maybe even from me?! I glanced his way....welcomed him back....and said that I was disappointed he missed the first part of my presentation. As he slumped into his chair, his teacher "matter of factly" said to him that she was going to mark him absent and that he should have not left the room for 25 minutes! Hoo boy.....upon hearing those words.....up he stood....backpack in hand...announcing that he could care less....and that he was "out of here"! There were a few expletives along the way....but I'll spare you the details.

Now spending 30+ years in teaching....this scene was not a shock to me...and I was able to continue on with the class with barely a bump in the road. But.....this young man......I could not forget! I gave my final comments, thanked the teacher and the class for the chance to share my story, and made my way down to the main office where I had parked my car.

As I entered the office....lo and behold....there sat the young man who just moments before had put on quite a scene. I decided I needed some closure to this incident so I made my way over to the row of seats where he was....and plopped down right next to him!! I think that was somewhat of a surprise to him, thinking maybe I was a little intimidated by him, but he doesn't know me very well:) I looked him right in the eyes and said...."I'm sorry you didn't get to hear me speak today! I think you would have found it very interesting if you weren't so worried about texting your friends!" He studied my face for just a moment....maybe in disbelief that I approached him after his "exit"......and in a very quiet voice said...."I'm sorry....". At which point I said....I accept your apology...and I hope that next time you are in that situation....you make a better choice....because people like me have something to offer students like you!

The young man smiled back at me and appeared to be relieved. I stood to leave....turned to him and said to him "Now can you help me zip up this jacket?"

This Christmas....who are the young people in your life that you can be there for? Take the opportunity to share your joy with them.......be a listening ear......be there to zip up a jacket!!! You just may help change an attitude or maybe a heart:)

Taking Care of Grandkids

2009-12-15T19:34:00.009-05:00

Kurt and Heidi brought their kids up to Cadillac last Friday afternoon for a weekend with Grandma and Grandpa. How BRAVE we were to take four kids under the age of 5 for two nights!!!! Just kidding....it was actually very easy! The great part is that they are used to a schedule and daily structure:) That made meals, nap time, and bed time pretty simple for us 50+ year olds!!!

The unstructured moments I discovered are "diaper changing" times!!! This at time became very comical to me!!! While one twin said"Ucky....Bama"....I quickly whisked her off to change the messy diaper....at which time the three year old said..."Bama...I have to go ucky on the toilet". "Just a minute"....I would say.....while fumbling my way around a onsie with my contracted fingers...."Grandma will be right there!!!"....smile...velcro the diaper...set a twin down....turn to her and say,..."Grandma will be right back!!!".....go in....wipe the three year old....praise him for a job well done.....just to exit the bathroom and have the second twin pointing to her backside saying "Bama....ucky!!" I just stood there...laughing to myself....and started all over again!! Realizing why parents are Younger and Grandparents are Older!!! And....I wouldn't have missed it for the world:)

We had a wonderful weekend....had a lovely lunch prepared by Ken when Kurt and Heidi arrived....visited for awhile....said our goodbyes...and took a nap!!

"Toy Town" in Cadillac....my favorite place for children;s toys!!!

2009-12-07T13:12:00.003-05:00

http://www.toytowncadillac.com/

Looking for gift ideas for the children in your life?? Look no further!

Thanksgiving Memories

2009-12-05T21:32:00.008-05:00

Sorry it has taken so long to post the pictures from our wonderful Thanksgiving week! What a blessing it was to have four days in a row of visiting with family and friends! We enjoyed Thanksgiving day with Emily's side of the family (thanks for the invite!!)....on Friday we traveled to Jenison to spend time with Kurt and Heidi and kids....Saturday we headed to Onekama, where Emily and Ken prepared a wonderful meal for my parents....and Sunday afternoon we went to Mesick where we topped it all off with a visit with Ken's sister and brothers. Pat and Dave were in Florida......however...we are looking forward to seeing them over Christmas!

This first week in December has flown by! Sometimes I feel that we are busier now than we were when I was working! I kind of dread the cold weather coming though......tough on scleroderma:(

The next few weeks will be exciting as we prepare for Christmas. On Saturday evening we had a Christmas Dinner for the ladies at Rollins Christian Fellowship. I was asked top bring the devotions for the evening...and I entitled it "The Ultimate Gift". I am so excited that God still chooses to use me for His service....and that He gives me strength when I need it.

Emily's side of the family

celebrated on Thanksgiving day.

Getting the decorations up

Fun in Grand Rapids

A Beautiful Day in Onekama

Special times in Mesick

Visit to Onekama and Dad's Birthday

2009-11-23T19:12:00.005-05:00

We made a trip to Onekama on Saturday to visit Mom and Dad and celebrate Dad's "86th" birthday. The day was absolutely beautiful for November!! We enjoyed lunch and a little cupcake with a "musical" candle:) Linda and Don will be with them on Wednesday and Thursday for Thanksgiving...and we'll return again on Saturday with Jason and Emily and family:)

Mom is coming along slowly from the compression fractures...and is getting wonderful care from visiting nurses and physical therapists. The doctor said injuries like this take several weeks to heal!

This month....just like all the others.... has flown by!!! It's hard to believe that Thanksgiving Day is almost upon us!!!

I hope that in all the hustle and bustle of these days that everyone gets a chance to stop, relax and enjoy the fellowship of family and friends!

We all have been blessed in so many ways...and it is so important to meditate and reflect on God's goodness to us!!! Take time to appreciate those you who love you and whom you love!!!

In everything I have experienced since the onset of my scleroderma...the one thing that I have learned to do is "give thanks for the moment I am in". Whether in comfort....or in discomfort...I am completely thankful for the day God has given to me...and strive to live it to it's fullest!!!

Check back often as I will be posting lots of pictures this week!

Thursday we will be spending with Emily's family and extended family.

Friday we will be traveling to Jenison to see Kurt and Heidi and grand kids.

Saturday, Ken and Emily will be co-preparing a meal for Mom and Dad in Onekama.

Sunday....we will live off of leftovers:)

Scleroderma Update

2009-11-18T10:14:00.011-05:00

Judy with Dr. James Seibold

(perhaps the first picture he ever had taken with a patient

during an office visit!!!! He was very gracious and posed for the pic!!!)

I know what my kids are thinking right now...."Mom and her camera!"

Actually.....Ken took the picture:)

Ken and I traveled to Ann Arbor for my check up with my specialist

Dr. James Seibold for the U of M.

http://www.med.umich.edu/scleroderma/faculty/index.htm

http://www.sclero.org/isn/hr/bio/seibold-james-r/en.html
My appointment was early Monday morning....so we went down on Sunday to avoid leaving in the wee hours on Monday.

My appointment went quite well! Dr. Seibold said I have NOT worsened with my disease....and have gotten a "little" better! Ken and I were so encouraged to hear that news!!! Although my skin is still very hard in my hands/arms/feet....it has softened in my face and a little on my legs.

We are not sure if the improvement is attributed to meds or just the natural course of the disease. Ultimately we know it's improved because God has allowed it...and the prayers of the faithful are heard!!

Dr. Seibold also informed us that he has taken a position out East and will be leaving U of M after February 2010. That was sad news for us because we had just gotten acquainted with him and were very satisfied with the course of treatment. Dr. Seibold is a brilliant physician who has spent a lifetime committed to research and awareness of scleroderma and related diseases. I remember my first appointment with him....thinking to myself "This Dr. is too serious for me....he doesn't even smile at his patients!!" I was quite dis-heartened. But after two more appointments and phone conversations....I struck up a bond with Dr. Seibold and knew in my heart that he was genuinely interested in me as a person and patient!!! So now....after one year with him as my physician....we bid "adieu" to Dr. Seibold....and yet look forward to continuing on with the scleroderma department at U of M.

On the home front I have been spending lots of hours setting up a special fundraiser raffle that is going on now through November 30th.

A few weeks ago we were given an autographed picture of Taylor Lautner...our great-nephew (Ken's side) who hails from Grand Rapids, Michigan....but currently lives in California! Taylor is a Hollywood actor who has made his way to super stardom in just a few short years!!

http://www.imdb.com/name/nm1210124/

His current movie is "New Moon" scheduled to open in theaters on November 20th. As you check out in the grocery stores and peruse the magazines....you can generally find Taylor's picture all over the place!!!! For those of you know who know Ken's side of the family....Taylor is Dan and Deb's son....Pat and Dave's grandson.

We have enjoyed following Taylor's career...and are now very appreciative that we can help help raise funds for the disease scleroderma because of their generosity:)

The ticket sales started Monday and the drawing is December 1st.!!

For $1.00 donation you can enter your name in the drawing for a chance to win this autographed picture. The raffle is being sponsored by the Cadillac High School Student Council. They have been awesome in helping me out with this cause....and know the impact it has had on me personally.

Because of this disease I had to step down from my teaching job in October 2007...and officially retired May 2009. There are still many students at CHS whom I taught and they are being so supportive of this effort!!! All proceeds from this event go to the Michigan Chapter of the Scleroderma Foundation. This will fund research, patient resources, and public awareness of a disease that many people have never heard of.

Custom framed picture of Taylor.

Winner to be drawn on December 1st.

Some of the CHS student s assisting in ticket sales.
Here are more details:

$1.00 one ticket $5.00 six tickets $10.00 12 tickets

Available for purchase at:

WEXFORD JEWELERS in Cadillac
231-775-1289

CADILLAC FIVE THEATER
231-775-7261

CADILLAC FAMILY PHARMACY
231-775-8200

THE SWEET SHOP in Cadillac
231-775-2201

NORTHWOODS FEED on Boon Road, Cadillac
231-779-9883

CLASSIC FORD LAKE CITY by Lake City
231-839-4366

Tickets are also available at CHS, Manton HS, The UPS store
or by mailing a check/money order to:

CHS Student Council
400 Linden Street
Cadillac, Michigan 49601 attn. Ann Bush/advisor

Include your Name/Address/Phone

State how many tickets you would like and they will be
filled out and put in the drawing for you!!!!!

Checks/money order payable to CHS Student Council
In the Memo please put "Drawing"

Remembering a Best Friend

2009-11-15T11:18:00.003-05:00

One year ago November 16th one of my closest friends from Onekama passed away from complications of Multiple Sclerosis. Although Toni and I didn't get together much over the years after our high school days....we always cherished our friendship and love as best friends.

Several months before Toni died we struck up our "old days" by talking on the phone every week...and sometimes every other day. Those conversations were sweet....and bittersweet:( Sweet in the sense that we laughed and joked about our young days....the goofy things we did and said...the songs we sang..the places we went.

We shared our experiences of having children and being able to watch them grow and mature. Toni had a tremendous pride in her sons and daughters and grandchildren. She cherished the time she spent with them..and wanted more than anything to be here for them as the years went on.

We talked about our parents and the upbringing we both had. Toni deeply loved her Mom and Dad, brothers and sister and we talked about them often. Especially the times involving music...it was our bond. To this day...I still have a wonderful friendship with Toni's parents and Nikki, Dana, and Darryl.

The bittersweet part is all of the suffering Toni experienced. She was diagnosed with MS early in life and endured the struggles associated with it. Life was not easy for Toni....but she lived it gracefully...not complaining....but rather quietly suffering. Her children were her life! They helped care for her.....took her places....and stayed in her home. Toni talked to me about them alot...and said if it wasn't for them...she didn't know how she could go on. She would also share with me that she felt like a burden at times....and to that I always responded...."They are your children...they love you...let them help you.. And help her they did....right up to the time that God called her to heaven.

We also discussed the private matter of life...our marriages...our joys...our fears. this is where my heart was saddened the most. Toni often went it alone in life in many ways....which sorrowed her...but as she would say.....these were my choices. She would tell me that my husband Ken is a good man...that I was very lucky to have someone like him to take care of me when I became ill with scleroderma.

Toni was beautiful....inside and out!!! Her beauty, spirit, and determination lives on in her children, grandchildren, and her family. She is in eternity with her heavenly Father...and her Savior Jesus Christ!!! She is free from her sorrows and troubles...and is waiting for the sweet homecoming day that those who have trusted Jesus as THEIR Saviour will see her again.

A Good Samaritan

2009-11-13T19:18:00.004-05:00

Today was the first time in almost three years that I stopped at the gas station to get gas by myself! I found it necessary to stop before I went home because I was on "low fuel" and only had a few miles to go before I ran out!!!

So....bravely I stopped at the pump....looked around at the many people around me....and thought "How am I going to do this?? I can't even get a gas cap off with my contracted fingers....let alone pump gas!!!".

I scoped out the crowd around the gas pumps....looking for a "friendly face"....or perhaps someone I knew, and cautiously pulled the gas cap flap back and attempted to unscrew the cap...with no luck! I felt a little anxious...and felt a little teary eyed...but I took a breath and looking straight into the eyes of a gentleman walking out of pay area I said "Sir....could you please help me?" I gulped as I waited for his answer...and I kept saying to myself..."don't cry...don't cry!!" He gave me a huge grin and walked up to my car and began to assist! Whew...I was relieved..and happy that people still find joy in helping one another out!!!

After $10.00 worth of gas and some small talk...the gentleman politely asked me what illness I had? When I told him it was scleroderma.....he said he had never heard of that...but then I said it was a hard skin disease....he had heard of that!!! He seemed saddened by my situation....and quite sympathetic. All I could think of was what a kind man he was...and I told him several times how much I appreciated his help...and that my husband would be so thankful that he came to my assistance!!!!

After a few minutes, a few gallons of gas, and some friendly conversation, I drove home.....confident in the generosity and benevolence of mankind!!! Or perhaps.....my Good Samaritan!!!!

Weekend Updates....Rachelle is better, Madeline turned "1", misc. other musings:)

2009-11-08T21:15:00.007-05:00

Friday evening we celebrated Madeline's first b-day at Jason and Emily's. She took the whole evening "in stride" and even ate her cake very politely:)

Madeline sitting on her new Little Tikes riding toy....and below enjoying her cake!

We are so excited to report that Rachelle's condition improved and she was able to come home!!! She is still on medicine....but is getting better. There were so many people praying for her and I know this meant so much to Kurt and Heidi. Once again we are so thankful for a network of people that we can connect with almost "immediately" for prayer!!!

On Thursday Ken had a little "bout" with kidney stones:( He was pretty uncomfortable for a while...but but Friday afternoon he was on the mend!! Remember: Drink Water~water~water!!!

I had Thursday and Friday with Grandma this week! Isaac is continuing his piano lessons weekly and is almost half-way through his lesson AND theory books. He seems so interested in learning....so the normal half hour lesson is more like one hour total during the course of the day.

Linda and Don stopped by Saturday night on their way home from Onekama. We enjoyed their visit and topped it off with a cup of coffee and piece of apple pie!!!!

Sunday, Nancy Lanning and I sang special music at church...and Jason accompanied us on his guitar. We sang a good old "toe tapper" song...you know the kind you smile all the while!!! We sang "In The Sweet By and By". Just before we sang I shared a few words that even though we are singing about the "Sweet By and By", we need to be serving our Savior Jesus in the "Here and Now"!! People are watching your testimony and mine...are we sharing with others that blessed hope?

Later Sunday afternoon we went to Onekama and visited with Mom and Dad. Mom is still struggling with discomfort and pain from the compression fractures. Please continue to pray for healing and relief from the pain.

Compared to a year ago I feel so much better emotionally!!! Last year I felt like I was crying half the time because of my scleroderma...the changes in my life...the fatigue...the pain. And now....1 year later...I am not "fearing" the disease anymore...I am still serving God where he leads and needs me...and I have learned to celebrate the "Little things" in my day...instead of the 'big obstacles" I always felt were in front of me!

I have learned to handle the fatigue and ignore the pain....and as for the tears?....just now and then.....but mostly "then".

Update concerning Rachelle

2009-11-04T15:13:00.003-05:00

Rachelle....picture taken October 21st.

Our grand-daughter Rachelle (22 months) was admitted to DeVos Children's hospital last night. She has bacterial pneumonia...and despite the antibiotics she received the other day...her condition worsened. The main issue right now are elevated heart rate, low oxygen levels, and no desire to eat or drink. She is in an isolation unit and Kurt and Heidi are with her . Heidi was with her continually during the night..and will stay this evening as well. Kurt works the night shift at Gordon Food Service.

Please pray that they get the rest they need to take care of Rachelle and the rest of their family.

Grandpa and Grandma Scott are with the other three children and taking care of them. We are talking with them every few hours and getting an update. Please pray for improvement and that she should desire to eat and drink.She will have to remain in the hospital until she can do that. Thank you for your continued prayer support!!! Our God is SO BIG...So Strong and So Mighty...There's Nothing our God Cannot Do!!

Jonny's B-day

2009-11-02T09:45:00.004-05:00

Our Grandson Jonny turned three on October 30th. We had hoped to go to Jenison and celebrate with the family on Saturday, but due to the colds and fevers....we thought it best to stay home and visit later when everyone is feeling better!
Here are some pictures from Jon's party....the theme was "Curious George".

Heidi made the cake!!!!!

Jonny turned three :) Rachelle had a fever of 105:(

2009-10-31T10:04:00.004-04:00

There was lots of excitement and stress in Kurt and Heidi's house yesterday. Jonny celebrated his 3rd birthday yesterday....and Rachelle spiked a high fever....going as high as 105. Heidi took her to the clinic she always goes to......and unfortunately her regular doctor wasn't there and she had to see another physician...who unfortunately was abrupt with her about Rachelle's condition...and basically sent her home and recommended cold packs to bring the fever down.

After a consult with a nurse and Heidi's Aunt Becky (who is also a nurse)...they knew in their hearts there had to be something more....so when Kurt got home from work they took Rachelle to DeVos children's hospital where Rachelle was diagnosed with bacterial pneumonia. http://www.emedicinehealth.com/bacterial_pneumonia/article_em.htm

Rachelle is doing somewhat better today...but it will take a few days to be back to normal. She is on a five day antibiotic...and should see improvement in a couple of days.

We had planned on taking a trip to GR today to celebrate Jonny's birthday...but due to the fever and illness...and me having an auto-immune disease...susceptible to bugs....we will visit another time!!

When they have pictures to share...I will pass them along on the blog!!

Additional requests:

Please continue to pray for our Mom,
Lois Hopkins...she is having some difficulties controlling the pain from the compression fractures...Linda went to see them Friday-Saturday. she is trying to help Mom find the right meds to help her. Sometimes pain can be so difficult to control..and it takes "trying this and that" until one finds the right blend.

Please pray for the sale of Kurt and Heidi's house. They have listed it with a realtor....and there have been a few people looking.

Thanks....and as always....we treasure your love and friendship!!

End of October already!!!

2009-10-29T18:23:00.008-04:00

It's been another busy 10 days in the lives of the Nichols!!!

I went down to Jenison to Kurt and Heidi's recently and helped with the grand kids while Heidi and her Mom, Carol, were at a Bible conference at the Grand Hotel...and Kurt was home...but works nights.

I had a wonderful time with everyone and am so thankful I could be able to do this!! The kids were so cute.....followed me everywhere I went..and listened to every silly song that Grandma could sing!!!

Mom is still on the road to recovery...but had a set back this week when she fell from her chair. The compression fractures will heal very slowly...and in the interim...mom is getting physical therapy, a nurse's aid, and visiting nurse for vitals/etc. Please continue to pray for Mom and Dad...as this has been quite a struggle for them...and requires alot of patience. Linda and I talk to them daily (several times) and Linda and Don were in Onekama last weekend as well.

Last Fri-Sat-Sunday...our church Rollins Christian Fellowship, held a crusade featuring the 'Stand Strength Team". The attendance was amazing....God really blessed....many people made first time decisions to follow Christ...plus many more re-dedicated their lives and service to Him!

Joel has struggled with a cold this week...but seems alot better today...Ken and I are doing well....with NO symptoms:)

I had the honor of interviewing with the National office of the Scleroderma Foundation this week via phone conference. The interview was an hour long and will be featured in an article to appear in the December issue of The Voice magazine:)

Ken took some pictures of me in the front yard by a tree for the article...and misc. other . We laughed alot as I said it felt like Senior pictures......and Ken said it WAS a picture of a Senior!!!

Me

Isaac practicing his piano lesson

Annabelle in Grandma's Scleroderma Foundation hat

Uncle Joel and Isaac in their

Stand Strength Team shirts.

Visit to Jenison

Andrew before he went to preschool

Jonny....turns three on October 30th

Kurt and the kids.

Heidi was at a "Win Some Women" conference

held at the Grand Hotel on Mackinaw Island.

More "Daddy and Kids"

Grandma and the darlins!!!

Rachelle holding her new purse

Kirsten and her "Dora" purse

Playing at the table with word puzzles.

We had to find something quiet to work on

while their daddy was sleeping!

Andrew and Jonny playing with the puzzles.

Kurt and the kids...We had such a nice time....

I'm glad I could help out with everything :)

Our first dining table/chairs was one my parents had, the second one we got 20 years ago and it survived two moves and "3 growing boys. .... Last Saturday our new dining set was delivered and will probably be our last!

It's got three leaves in it and expands to fit "Lots of us"!!

Recent Article from the National Scleroderma Foundation

2009-10-20T14:32:00.002-04:00

We traveled to Washington DC recently to raise support for H.R. 2408 and S. 1545. here is an article that was online from the National Scleroderma foundation's website: http://www.scleroderma.org/news/news2009/news2009cap_hill.shtm

Thought I'd share it with you:)

Please continue to pray for Mom as her healing process begins for her compression fractures. Don and Linda will be in Onekama this next weekend.

Ken is taking me to Big Rapids tomorrow where Kurt and the kids will pick me up and take me back to Jenison for a couple of days! I am really looking forward to seeing everybody...and maybe even a little shopping with the kids! Heidi will be at a Christian Women's conference Wednesday and Thursday with her mom. I'm so glad I can help out in this way! I'll get lots of pics!!!! I always do!! LOL

Hopkins Update #4

2009-10-18T19:20:00.003-04:00

Mom is home and resting comfortably now. Linda left late Sunday afternoon.....Ken and I went to Onekama after church to help out.
Carelinc was at the house to set up oxygen for mom to use at night and during naps as needed. This is primarily for her congestive heart failure and comfort of breathing. Please pray that her compression fractures would heal quickly...and that she and dad will get the rest they need. Don and Linda will go to Onekama next weekend...and Ken and I will be available also.

If you live close by our parents and would like to help out....please give them a call first....I'm sure they would appreciate anything you can do to help out:) If you bring any food....mom is supposed to be on a "lower" salt diet...so keep that in mind.

Thanks for all of your well wishes and prayers....it has been a trying time for our parents...but we will monitor them closely and do everything we can for them!

Hopkins Update #3

2009-10-17T20:47:00.005-04:00

We met with the doctor at West Shore hospital today and discussed plans for Mom when she comes home on Sunday. They took an additional xray today to evaluate the lungs and make sure that they sound good. The pain from her compression fractures has improved, which has alot to do with the liquid (1 liter) being drained from her lung.

The doctor talked with us about a plan when Mom comes home, which will include a visiting nurse/home health care for awhile until she makes significant improvement. Because they live in a tri-level home (with NO main floor bathroom) they will provide her with a commode....to lessen her need to walk up the stairs all the time.

I came home this afternoon after we met with the doctor....Linda is staying one more night to be with Dad and help bring Mom home on Sunday. Ken and I will go to Onekama Sunday after church to help them get settled in/organize medicine....and get settled in for the coming week. We are also going to provide them with names and numbers of friends in Onekama that they can call if they have a need.

We are so thankful for the many emails we received from people praying for them....and wondering what they can do to help. Mark Ward came over this afternoon and filled their bird feeders...and friends Ron and Nan, and Dan and Marlene visited at the hospital. Linda and I were so glad to be able to be there together with our folks...and like Dad says "Here we are....just the 4 of us again".

I always am so excited to see how God works in situations like these....how He provides comfort, special people, and just the right timing!! When the ambulance arrived at the house Friday morning it was there within ten minutes of the 911 call. I didn't feel that I was able to help Mom down the stairs...and Dad was concerned about the compression fractures and bringing her down the stairs.
So....."Sclero-woman" and "super Dad" opted out of this and left it to the pros. well....lo and behold....I knew two of the pros...one of whom I graduated from Onekama high School with back in 1973!! Then when we arrived at the hospital to check Mom in....the woman that runs the main switchboard/check in area was one of my BEST friends from high school!!! Sandi and I just hugged and hugged......and all of the memories and special times we shared just flooded my brain!!!! Sandi was like a daughter to our folks...so it was very calming to Dad and I as we arrived!

Later in the afternoon when the dietitian arrived to Mom's room to order her supper...it was Sandi's sister Pam!! Pam is just like family too....so again there was another special person God put in our path!! The nurses were all great to Mom and made our family as comfortable as possible! God bless those who work in health care.......they are precious:)

Just before I left on Saturday, I stopped by the nurses station briefly..and our conversation turned to scleroderma (hmmm....how did that happen?) Anyway....I used it as a "teachable" moment. I was surprised to find that only 1 out of the 6 nurses at the station were familiar with the disease. I shared a little bit of information....but mostly shared by the example of my skin! I walked out of the hospital with DETERMINATION......that before the end of this year.....I want to share my story and the impact of this disease with as many health care personnel as possible! Okay....so I may not be teaching in the classroom and directing choirs...but I am still a teacher at heart and the doctors offices/hospitals/etc. are my new classroom!! Good night:)

Hopkins Update #2

2009-10-17T10:32:00.001-04:00

Mom had a pretty restful night...we are waiting on the doctor to visit this morning...Dad and Linda went down early to West Shore...I slept in and will join them soon. Made some phone calls this a.m. Trying to figure out our next step in caring for Mom when she is released from the hospital. Thanks soooo much for your prayers!!! We feel them!! Will update this afternoon:)

Hopkins Update

2009-10-16T16:54:00.002-04:00

Our Mom, Lois Hopkins was admitted to the hospital this morning with breathing problems, issues with pain from her 2 compression fractures, and general discomfort. This afternoon they did a procedure to remove 1 liter of fluid from her lungs....which should relieve the struggle to breathe.
Linda (my sister) and I are able to be here and stay overnight to help out...and keep Mom and Dad company. I came to Onekama on Thursday evening...and I'm glad I did as I was able to help out with Mom in the middle of the night so Dad could get some much needed rest!

Now that Linda is here....I brought Dad home for some rest (Me too!) and then we will spend some time together with Mom this evening. They are still running tests and evaluating here condition....but having the liquid drained was alot of relief. Please pray that they would find the right combination of pain meds....that don't leave her sedated so much....but do relieve the pain! We are thanking God for safe journey to Onekama...that we can be together for Mom...and that Dad gets some much needed rest as he continues to take care of his beloved wife of "64" years.

We have lots of things to talk over/organize/and generally help outwith....Please pray that these decisions would go smoothly.

2009-10-13T18:53:00.006-04:00

Most of you know that Ken and I just returned from a trip to Washington DC where we had the privilege of meeting with over 15 legislative staff members rallying for two bills before the House and Senate. We traveled with the Executive Director of the Michigan Chapter of the Scleroderma Foundation and met up with 50 others from across the United States.

Our purpose was to rally get co-sponsorship for bills H.R. 2408 and S. 1545 called “The Scleroderma Research And Awareness Act”. By the time we left Washington we were up to 59 co-sponsors in the House and 4 co-sponsors from the Senate. These are non partisan bills.

I am writing this to all of you who follow our blog. I know that you are aware that I have the disease Scleroderma but I do not know if you are aware of the pending bills.

We have gained the co-sponsorships of Rep. Pete Hoekstra and Senator Debbie Stabenow but not Senator Carl Levin. That is why I am writing to you for your help! I believe that Senator Levin will vote yes if it comes to the Senate floor, but his Legislative Assistant Kristina Ko said he would not co-sponsor. We need Senator Levin’s co-sponsorship of this critically important bill to get it to a vote in the Senate!!!

I am asking you to please call Senator Levin’s office in Washington at (202)224-6221 or email him at http://levin.senate.gov/contact/ and ask him to please reconsider co-sponsoring S. 1585. Let them know that a friend of yours who has scleroderma recently met with Ms. Kristina Ko and that you were hoping they will re-consider their position.
You can tell them you are familiar with scleroderma and that you want to see funding increased. The best days to call are Tuesday/Wednesday/Thursday 8:30-6:00.

I have a copy of the bill if you would like to read it! I'll just scan and send it! Please email me at nichols@wildblue.net or call me at 775-8446 if you have any questions. I invite you to join Ken and me in this effort but certainly understand if for certain reasons you are unable to. Your call can make a difference!!!! Thank you immensely for taking the time to read this and please pass it along to others who you know who may be interested.

Today was quite the day!! On Tuesdays I am attending a Bible study at First Baptist Church in Cadillac and we are studying the book of Esther.
It is a powerful study and God is teaching me so much!!! The video bible study is led by Beth Moore....
http://www.lproof.org/aboutus/bethmoore/default.htm
Check out her website.....she is an outstanding Bible teacher with lots of resources!

Also this morning......in the matter of prayer request:

Please pray for our Mom, Lois Hopkins who has suffered a compression fracture in her back (actually i think she has 2 compression fractures) She has been in "gradually getting worse" pain since last Wednesday. She went to her cancer doctor today and had several xrays and a ct scan.....praise God...there was no cancer! but the fractures are some of the worst pain a person can suffer. prayerfully...and hopefully in the next few days she will improve!
Please pray for Ralph Trowbridge who in is the hospital undergoing several tests....they really don't know what is going on....but God does!
Joel has been having a couple of rough days at school......mostly behavior...and we're not sure why he sometimes acts the way he does :( But we love him...and keep as much structure for him at home as possible! Thankfully when we were gone to Washington
he was great for Jason and Emily!
Please pray for the sale of Kurt and Heidi's home in Jenison. They will be moving to Kenosha, Wisconsin in a few months and would really like to see their house sold before they move:)

As always.....thank you for following our blog....and feel free to share it with people you know!

Our Grandson Isaac turned "6"

2009-10-11T13:06:00.010-04:00

Happy Birthday to Isaac Nichols who turned 6 years old last week!!!

We can't believe how time has flown by.....already Isaac is in Kindegarten at Heritage Christian, can read, can write, can ride a bike without training wheels, and started piano lessons with Grandma Judy.

I told him in ten more years he could drive me to my doctor's appointment and mow Grandpa's lawn!!! He was all for that!!

Enjoy the pics from his early years....which he is still in!!LOL

October 2008.....5 years old

Isaac at 2 years old...October 2005

Isaac with his train cake at 3 years old

First birthday
Oct. 8th, 2004

Isaac at four:)
October 2007

Isaac at three years old...

Oct. 2006

I love that little wrinkled up nose!

Raising Awareness for Scleroderma

2009-10-10T16:13:00.013-04:00

Our team in Washington
The "Washington" look:)

Kris, Judy, Laura, Paula

We arrived home safely on Friday, Oct. 9th after a three day visit to Washington DC . The purpose of our trip was to obtain co-sponsorship for two bills that will fund research and raise awareness of the disease Scleroderma. We traveled with Laura Dyas, the Executive Director of the Michigan Chapter of the Scleroderma Foundation, along with over 45 other people from various states.

Our schedule was very busy. On Wednesday we met with the staff members from several Senator's offices and on Thursday we met with staff members from Congressional offices. Each meeting was 15-20 minutes long and the agenda was to tell our personal stories about scleroderma and talk about the bill itself. I was shocked at how many staffers had never heard of scleroderma nor had seen someone with the disease. I shook everyone's hand that I met....and in some cases...the staff member even felt the hard skin on my arms.

The most emotional moment for me and the team was with was when Congressmen Mark Schauer from Jackson personally attended our meeting pledging his commitment to co-sponsor the bill....right then and there!!!! He was a very gracious man....with a big heart for people!!!
We all sat there with tear-filled eyes as he shared his concern!!

He joins the following Congressmen from Michigan in co-sponsorship:
H.R. 2408...there are many others from other states...but I have only listed Michigan.

Rep. Vernon Ehlers (Mi) Sponsor of the bill (Mi-3)
Rep. Carolyn Kilpatrick (Mi-13)
Rep. Gary C. Peters (Mi-9)
Rep. Fred Upton (Mi -6)
Rep. Dave Camp (Mi-4)
Rep. John Conyers (Mi-14)
Rep. Peter Hoekstra (Mi-2)
Rep. Dale Kildee (Mi-5)
Rep. Candice Miller (Mi-10)
Rep. Thaddeus McCotter (Mi-11)

Senators co-sponsoring S. 1545
Debbie Stabeonow (yes)
Carl Levin (gave us a meeting)
Bart Stupak (would not give us a meeting)

I believe after the trip we were up to 59 congressional co-sponsors and 4 senate. I have only listed those from Michigan. This is not a partisan bill and it has gained support from both sides of the aisle. The bill S. 1545 was introduced by Senator Kirsten Gillibrand of New York and the bill H.R. 2408 was sponsored by Rep. Lois Capps of California.

I am very disappointed by the offices of Carl Levin and Bart Stupak for refusal to sign on to co-sponsorship. If you have any pull in any of those offices....I will get back to you with a way that you can help!

While we in Washington we had the joy of meeting up with Ken's first cousin Rebecca Yount. We went to dinner with Becky and Darryl the first night we were in town and had a wonderful visit! The next two days were spent in meetings.....and for me mostly in a wheel chair being pushed by Ken so we could get to meetings quick and ON TIME!!! There was so much walking....I would have never been able to walk the distances required of us!

On the interesting side....I watch alot of FOX News so I am quite familiar with politician's faces.....so when Ken was wheeling me down a corridor on Capitol Hill....I turned to a gentlemen and said "Hello Mr. Frank!"....at which point "Barney" turned and said "Hello". When we stopped for lunch in the congressional cafeteria and I stopped and shook hands with another gentlemen, introducing myself and talking briefly about our purpose in DC and the Scleroderma Research and Awareness Act.....and Mr. Dennis Kuscinich responded..."I am aware of that bill....I support it....and someone on my staff has that disease".

We met so many precious people on that trip who were rallying for support......and we made several new friends. Personally I have not met too many people that share my disease....so it was very special to me to connect with them. Suddenly I didn't feel so alone with my "curved fingers....tight skin and hands!" Everyone's story is different...and they have the disease in many varying degrees. I know I will stay in contact with these "courageous" friends...and I will plan on attending the National Scleroderma Foundation Annual Conference next year in Boston. My hope is that my sister Linda will be able to go with me....as it is a tremendous and informative Conference with so much to learn! Linda is very keen when it comes to medical issues and I know together we could benefit from the conference.

I am so thankful that Ken could take vacation days to go with me, that Jason and Emily moved into our house with the "4" children to take care of Joel, and that we had the prayers and well wishes from so many friends and family! We are so blessed to know that we have you all to count on!!
Thank you for your support...
God gave us a safe journey to and from Washington...and I know He will continue to watch over us....direct our days...and show us ways we can continue to serve Him...even in the midst of trials!

Arrived safely...one day of meeting down...one to go!!

2009-10-07T21:58:00.003-04:00

What a tremendous experience it is to be in Washington DC and share my personal story with senate and Congressional office on Capital Hill. I will share much more when we are home...but as of today 56 congressional leaders and 4 senators have signed the bills to co-sponsor legislation that would fund additional research and awareness for the disease scleroderma. We have met many wonderful people....I think I am on overload with information!!! Check back soon!

Washington DC....Here we come

2009-10-02T13:28:00.008-04:00

Well I can't believe that October has arrived already an we are less than a week from heading to Washington DC. Several weeks ago I was asked by the Director of the Scleroderma Foundation of Michigan to accompany her on a trip to Washington DC to rally support for two bills that would allocate funding for scleroderma research and awareness. Not only would these bills benefit scleroderma research...but they would help ALL auto immune diseases.

Well since that invitation....it's not just me that will going...but Ken too!! I am so thankful to the foundation for allowing Ken to come along!!!! I really dislike going anywhere without him......so together we are able to make this adventure!!

On the schedule as of today we will be meeting with the following Senators:

Carl Levin http://levin.senate.gov/

Dick Durbin http://durbin.senate.gov/

Russ Feingold http://feingold.senate.gov/

Senator Baldwin and Senator Ryan

Congressmen:

Mike Rogers http://www.mikerogers.house.gov/

Mark Shauer http://schauer.house.gov/

Sander Levin http://www.house.gov/levin/

John Dingell http://www.house.gov/dingell/

As always....anything is subject to change....but I'll know more when we are there.

Please pray for our trip! We will be flying from TC to Detroit, then on to DC on October 6. The majority of the meetings will occur on Wednesday, Oct.7 and Thursday Oct. 8. We will fly back to Detroit Thursday evening...then to TC Friday morning. Please pray that will we will be articulate as to the need for support on these two bills. We have never spoken face to face with our elected officials...other than locally....so we are excited to be given this opportunity.

Please pray for Jason and Emily as they care for Joel while we are gone. We truly appreciate their willingness to do this for us. Joel enjoys having them here....and likes to see "us" get away!! LOL

I am hoping to take lots of pictures and report back to you as soon as possible.....hopefully during the trip! Once again....thanks for your love and prayer support!!! We want to honor God on this trip...so please pray for moments to testify to His goodness....and His amazing grace!!

I can do All things through Christ who strengthens me!!

New News!!!

For all you bloggers out there....our daughter-in-law has begun a new blog that I'm sure you'll love to follow!!!! Here is the link:

http://emilynicholsblog.blogspot.com/

Emily is a 90% stay at home Mom....who works one day a week at Wexford Jewelers in Cadillac. http://www.wexfordjewelers.com/

I have the privilege of having two of their children (Isaac and Annabelle) on Thursdays while Emily works. Grandma Karen Roncari

http://allaprimalady.blogspot.com/ takes care of baby Madeline and Seth is at Heritage Christian pre-school on Thursdays. Emily has developed quite the gift for couponing.....so for all of you out there who are looking to save in your budget...this is the spot for you.

The Middle Of September??? Where did summer go?

2009-09-17T20:27:00.025-04:00

Jason and Kurt at Heritage in 1987
Isaac in 2009

Andrew in 2009

Andrew in front of his pre-school

Kurt in 1987 (4 years old)

What beautiful weather we have had in September!!! It's almost better than the summer weather all put together!! Labor Day weekend we had a cookout with Jason and Emily and their kids, plus Emily's Mom and sister and fam:) The weekend before my birthday Kurt and Heidi and kids came for a Saturday visit! It was a gorgeous day and we had a wonderful visit!

With the start of Fall so comes School! Three of our grandsons started school this September....Seth and Andrew are in pre-school, and Isaac started kindergarten! Alas.......a new chapter in our lives!!!

I turned another year older on September 17th....not much to get excited about......turning older....but I am very thankful to enjoy another birthday and am blessed by the events surrounding my special day....before and after!

I have started attending a Bible study on Tuesdays with Emily over at First Baptist in Cadillac...we are studying the book of Esther. I'm really looking forward to this ten week study in God's word and enjoying the fellowship with other women. On Wednesday night I am serving in our AWANA program at Rollins Christian Fellowship in Manton. I am helping lead the praise and worship time with Jason. Then for the rest of the evening I am enjoying taking random pics of clubbers in action!! I really enjoy using a camera....and I feel it's something I can do without getting to worn out:) I LOVE helping with music!!!! It reminds me of my many years spent teaching choir!

I am still having "Thursdays with Grandma"....but I'm down to 2 kids, Isaac and Annie" since Seth is at pre-school all day. I rest alot when I'm not doing anything.....just to keep up my strenghth when I can do things!

I know winter is just around the corner....so I am enjoying what I can do now before the snow flies!

I constantly have ideas floating around in my head that will be helpful for teachers......so within a few weeks here I look forward to sharing those ideas on our blog! Till then.....Enjoy our cool crisp nights, falling leaves, beautiful colors, and little pinto ponies:)

Seth's first day of pre-school
Madeline at our Labor Day cook out
(right after supper)

Seth enjoying dessert

Jason and Emily on their "up-north" getaway

Ken and I with Kurt and Heidi's kids

The "Kurt Nichols" family

Kurt, Heidi, Jon, Andrew, Kirsten, Rachelle

Jonny picking blackberries

Rachelle and the little mower

Andrew also started pre-school this year!!

Kirsten....smelling Grandma's candle:)

Ken and I on my 54th Birthday

Joel and Mom

Isaac started Kindegarten this year!!

Just think......we have three grandson's in school this year!!!

Seems like just yesterday they were babies!

Annabelle on my birthday.

Annie and Isaac still have Thursdays with Grandma,

Seth is in school on Thursday....so I am going to try and

have him over on Fridays!!

Emily made me a birthday cake, plus a yummy supper

Jason and Mom

For Your Consideration......

2009-08-31T19:51:00.004-04:00

Dear Friends,

Many of you have asked me what you can do to help me out since the onset of my disease "scleroderma". Well, one way you can help is by donating to the Michigan Chapter of the Scleroderma Foundation in my name. To me that would be a wonderful gift of support, The Michigan chapter has a specific way to donate in someones name. Here are the specifics:

Honor someone you care about with a tribute to our chapter. Simply send in your contribution--accompanied by a letter indicating who you are honoring, who we should notify of your gift with the person's address, and any special message you wish to:

Michigan Chapter of the Scleroderma Foundation

30301 Northwestern Hwy. Suite 300

Farmington, Michigan 48334

Please contact our office with your questions at 248-865-7259, or to make your donation via credit card.

Whatever amount you can contribute would be so much appreciated....$5 up to $50....or beyond!! Your donation to help find a cure for this rare disease will mean alot to me and many others who suffer from this same condition. Thank you so much for considering this request.....and if you are unable to help out at this time, I totally understand. Your friendships hold a dear place in my heart and I know you are always supportive no matter what.

Again.....if you can contribute please send your $gift to:

Michigan Chapter of the Scleroderma Foundation

30301 Northwestern Highway

Farmington, Michigan 48334

Include a note that you are honoring Judy Nichols with your gift.

Here is my address:

Mrs. Judy Nichols

1147 S. 37 Road

Cadillac, Michigan 49601

An Exciting Opportunity

2009-08-24T18:59:00.008-04:00

When I was diagnosed with scleroderma just over two years ago my life changed dramatically. My teaching career was cut short, my ability to play piano diminished, my freedom to do and enjoy every day activities changed, and my independence to help others and take care of myself would never be the same.

I was bitter with God at first, but soon learned that I would be "better" if I simply trusted His plan for my life and quit living in fear of the disease.

Praise God.....I have had victory over fear....and He has opened more doors for me that I never dreamed would open.

This brings me to my most recent opportunity:) I have been invited by the Executive Director of the Michigan Scleroderma Foundation to accompany her to Washington DC in October to meet with lawmakers . We will be joining advocates from across the US to make a plea to them to sign two very important bills that would raise awareness of and fund research for scleroderma. In addition I would be able to meet with leaders and share my personal story and thank those who have already signed on.

Scleroderma is an incurable disease.....and I am honored to think that I can take this small step to help make a difference. The itinerary for the three days will include luncheons, speakers, and general conversation with Congressional leaders from both the House and Senate.

I pray daily that the Lord will use me in whatever way He chooses.....and I believe this door He has opened will be life changing for others. I praise and thank Him for my disease and look forward to this experience.

The first thing that popped into my head when Laura Dyas invited me to go was "If lawmakers can offer Cash for Clunkers, they can certainly find a cure for Scleroderma!!" So......I will keep you posted as the time draws near! I know that the trip will be demanding...but I will be able to use a wheelchair when needed and when I need help....I have learned "to ask:)"

www.sclerodrerma.org/chapter/michigan

A little bit of This and That:)

2009-08-12T20:39:00.027-04:00

The past three weeks have "flown" by!! We have had quite a busy month, filled with family and friends!! We celebrated our 31st wedding anniversary, took care of Kurt and Heidi's kids "twice", had a wonderful visit with my sister, parents, niece, and great nephew, I went to a Princess tea with Emily, and we had a visit from a best friend from college, Donna (Grunewald) Johns and her husband Scott.

Along with the joys came the sorrows.... our dear friend and sister in Christ, Sue Kuhn, went home to be the Lord on August 9th. Her funeral was on August 12th. Sue suffered from brain cancer......despite surgery and treatments, it was God's will that she enter her eternal home in Heaven.......Sue touched the lives of so many people, she had a servant's heart and will be missed dearly. Please keep her family and extended family in your prayers as they face the weeks/months/and years to come.

I have attached lots of pics from the past three weeks.....not in the right chronological order.....but hope you enjoy them anyway!! Love to you all!

Our wedding day August 12, 1978
Emily and annabelle at the Princess Tea
Hosted by the Salvation Army in Cadillac

Annie and Grandma

Best friends for Life....Donna(Grunewald) Johns and me

Scoot, Donna, Judy, Ken

Judy and Donna

We went to Alma College together back

in the mid 1970's

Ou niece Andrea and son Elliott

Great Grandpa and Great Grandma with

5 of their 9 great grandkids:)

Mom reading to Isaac and Seth

Emily, Andrea, Linda, and me

Grand-daughters Kirsten and Rachelle

August 9th

Kurt and Heidi took a trip out west to attend

a wedding of friend....and we got to keep the kids August 9th and 10th.

The boys!

The girls

Cousins Kirsten and Annabelle

Grandpa and the twins

Kirsten

All eight of our grandchildren:)

Wow......they are all staying in place!!

SMILE!!

Oh Where Oh Where Did July Go?????

2009-07-31T13:36:00.035-04:00

I'm not sure where July went....other than I know it "flew" by!!! Half warm.....half not!! We had a pretty good month....with lots of fun with our family! Joel had the opportunity to attend another Christian Horizon's" Camp at Cran hill Camp in Rodney, Michigan. we will pick him up tomorrow! While he was gone I went to Kurt and Heidi's on Sunday afternoon through Monday evening. I had a wonderful time with everyone and look forward to seeing the kids again August 9th and 10th.

We also celebrated Seth's 4th birthday on July 28th. (Jason and Emily's 2nd born) It's hard for me to believe that Isaac is starting 1st grade this year....and Andrew and Seth will be in pre-school!!

I've been enjoying taking care of Isaac, Seth, and Annie once a week this summer....with the help of Uncle Joel! Joel will be headed back to school in September too! Ken has enjoyed some vacation time this July, we've attended a couple of weddings, and spent time with family and friends.

Health wise I'm still about the same, with some slight improvement:)

I continue to do what I can....and rest when I should!! Thank you once again for your faithful prayers....and for praying for the needs of others as requests come in!

We look forward to a busy August....and more warm weather!!! We are enjoying our "little" pony Sugar Babe......who puts a smile on my face every day cause she's so cute and sweet!!!! The kids love her....and will enjoy her for the many years to come!!! The dogs just think she's one of them!!!!

Speaking of dogs..............Kurt and Heidi are looking for a new home for their dog "Gus". I'll explain more in my next blog.....but if you know of someone who would like an adorable.....beagle/basset mix....mostly house dog....Loves people....but is scared thunder and digital cameras:)....please let us know:) The first set of pics is from our visit to Jenison....the second set is Seth's birthday!!!!

Just a reminder: To get respect, you must give respect:) An important lesson I learned from being a Mom and teacher!!

What Fun we had!!!

Heidi, Carol, and Me

Kurt and I took a walk down "Mulberry Lane"

with the kids:)

Andrew

Rachelle
Jonny

Kirsten

Grandpa having a good laugh with the kids!!!

Celebrating Seth's Birthday #4....

But first.....a look back:)

Seth at 5 months 1/1/06

Seth at One year old 2006

Seth at Two years old 2007

Seth at "Three " years old 2008

Playing with toys from "Toy Town"

We took Seth shopping :)

He had sooooo much fun!

Grandpa and Seth goofing around at McDonald's

Isaac and his cousins at the party

Seth at Four years old!

Annabelle

Madeline......crawling all over the place!!

Emily baked Seth's cake.....very delicious!

Getting ready for cake!

Happy Birthday Dear Seth.....

Happy Birthday to You!

Baseball on Saturday....Way to go Area 32 Special Olympics

2009-07-11T18:03:00.014-04:00

Area 32 Special Olympics had a double header Saturday in Cadillac! The weather was beautiful...and there was a breeze in the air. A special surprise to the day was that 4 of the counselors from Christian Horizon's Camp drove from Muskegon to watch the team play. Several members from the team attending the camp a couple of weeks ago....and were so excited to see their visitors!

Joel did a great job....played third , second, and pitched! We were pretty impressed by Joel's pitching....once he found his "rhythm"....he pitched some strikes:)

I can't believe that summer is half over....oh wait~~~~did it every really get here???? I am thankful for the warm days we have had....but hope Fall holds off for a long time!

Joel after the game

Dad and Son (our baby:)

Mom and Son

Jeffery and Mary Whitlow

Visitors from Muskegon and team members

Joel at third

Finishing the National Anthem

Before the game

Ready to go