Living With Scleroderma With a Smile

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Monday, August 24, 2009

An Exciting Opportunity

When I was diagnosed with scleroderma just over two years ago my life changed dramatically. My teaching career was cut short, my ability to play piano diminished, my freedom to do and enjoy every day activities changed, and my independence to help others and take care of myself would never be the same.

I was bitter with God at first, but soon learned that I would be "better" if I simply trusted His plan for my life and quit living in fear of the disease.

Praise God.....I have had victory over fear....and He has opened more doors for me that I never dreamed would open.

This brings me to my most recent opportunity:) I have been invited by the Executive Director of the Michigan Scleroderma Foundation to accompany her to Washington DC in October to meet with lawmakers . We will be joining advocates from across the US to make a plea to them to sign two very important bills that would raise awareness of and fund research for scleroderma. In addition I would be able to meet with leaders and share my personal story and thank those who have already signed on.

Scleroderma is an incurable disease.....and I am honored to think that I can take this small step to help make a difference. The itinerary for the three days will include luncheons, speakers, and general conversation with Congressional leaders from both the House and Senate.

I pray daily that the Lord will use me in whatever way He chooses.....and I believe this door He has opened will be life changing for others. I praise and thank Him for my disease and look forward to this experience.

The first thing that popped into my head when Laura Dyas invited me to go was "If lawmakers can offer Cash for Clunkers, they can certainly find a cure for Scleroderma!!" So......I will keep you posted as the time draws near! I know that the trip will be demanding...but I will be able to use a wheelchair when needed and when I need help....I have learned "to ask:)"

www.sclerodrerma.org/chapter/michigan

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