Living With Scleroderma With a Smile

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Friday, June 25, 2010

Our Precious Mom Entered Heaven Today

Mom peacefully went to heaven in the morning of June 25th.  Surrounded by Dad, Linda, Ken, Joel, me, Pastor and Nancy Lanning.  We recited the 23rd Psalm around her bedside....held her beautiful hands....then Joel started singing Amazing Grace....vs. one and four.  What a calmness came over the room as Mom quietly took her last breath. 

To be absent from the body is to be present with the Lord!!!! What a serene moment....what a day......glorious day this has been!!!

Mom's visitation will be Sunday June 27th at the Terwilliger Funeral Home in Kaleva.
http://www.bennett-barzfuneralhome.com/index.cfm

The memorial will be at the Onekama Church of the Brethren on Monday...June 28 at 11:00 a.m. with a luncheon to follow.

Wednesday, June 16, 2010

Update on Dale and Lois

I wanted to update you on the conditions of Dad and Mom.....so I thought I would just abbreviate it with a time line.



June 9th....Dad suffered a spell of vertigo with some chest tightness....spent one night in the hospital (Manistee)
June 10th...Dad came home

June 12th....Mom was admitted to west shore hospital in manistee with congestive heart failure.

June 15th....Dad suffered a small heart attack...was admitted to West Shore.....

June 16th...Dad transferred to Munson where he will undergo a heart cath Thursday at 12:30

June 16th....after 4 days in the hospital...Mom is improving very slowly....still very tired

Between Linda (my sister), Andrea (my niece) and me we are with Dad and Mom.

Our hopes are that Dad will be released from Munson on Friday...and that Mom will strengthen daily.

We are taking each day as it comes....and planning accordingly. Thank you for the many prayers and your support.

Saturday, June 12, 2010

Congratulations to Joel as he graduates from WMISD!!

Joel graduated from Wexford Missaukee ISD on Thursday after being a student there since 2004. We are very excited for Joel as he begins a new chapter in his life!!


Plans now are to volunteer at Goodwill, and set up a program with Michigan Rehab Services. School is all that Joel has ever known...so things may be a little confusing at first for him, but if we get him involved in a routine....we believe he will do just fine!

We attended the ceremony at the ISD on Thursday...and had a little get together for him at our home Friday evening. I have attached lots of pics from the day:) Joel sang a solo "Lean On Me" for his graduation....helped out by brother Jason. It was really sweet! We are so thankful for the experience he had at WMISD and for all of the amazing teachers who worked with Joel to help him get ready for "life" in general!!

Saturday, June 5, 2010

Please support me as I "Step Out For A Cure"!!



Dearest Friends, Family and Former Students,


In June of 2007 I was diagnosed with an incurable disease called "Scleroderma". This disease affected my skin, the largest organ in our bodies, and hardened my hands, arms, feet, and legs. Due to the disease I was no longer able to teach choral music at Cadillac Area Public Schools....and sadly had to retire in 2009 after 31+ years of teaching

Scleroderma crippled my hands, hardened my skin, took my career, but didn't steal my joy!!! . Actually it brought out a strong determination in my life to 'beat" this disease, advocate for others who are diagnosed, and assist in raising funds for patient education and awareness.

I had never heard of scleroderma until I was diagnosed with it. All I knew was there was no known cause, and no known cure.

The last three years of my life have been a tremendous adjustment for my family and myself. I am so thankful for their love and support!! In the past three years I have experienced many difficulties but my faith and determination remains strong!!

When I became ill I reached out to the Michigan Chapter of the Scleroderma Foundation, and they reached back to me!! Through literature, support groups, and a constant listening ear....they have made a difference in my life and the lives of others! Because of the foundation I have been able to meet many others afflicted with this disease , no two of us are alike!

I am asking you to support me as I "Step out " in finding a cure for scleroderma. On June 26th I am going to attempt to walk one mile!! Since scleroderma hardened my legs and feet....walking for the past three years has been very painful. It has only been in the last few months that I have gained mobility in my feet and legs and can walk more comfortably.

I want so much to be able to help make others aware of this awful disease. I have recently recorded a dvd entitled "Living With Scleroderma With a Smile" which will be on you-tube, Ken and I went to Washington DC with the executive director of the Michigan Chapter to rally support for two bills, and I am visiting different chapters throughout Michigan during their patient education day events. These trips totally whip me out....but in my heart...it is worth every minute if I can make a difference in someone else's life:)

I am asking you to "Please" support me in this endeavor!! Any amount will be greatly appreciated!! Every step that I take as I attempt to walk one mile will be for those who are suffering from this incurable disease!!! The sacrifice you make financially will bring hope and promise to so many others just like me!! I have set my fundraising target at $5,000....but am hopeful I will exceed that amount for the foundation!!

Currently Ken and I have over 1,450 friends on Facebook:) If each one of them gave $5.00, I would exceed my target goal!! I was thinking of things that cost $5.00 and came up with a massive list!! Just think...if you gave up 5 candy bars, 2 bags of chips, a rental movie, a caramel mocha, two gallons of gas, etc. You could help me reach my goal!!

PLEASE consider sponsoring me today....and watch with me as the $ grows daily until June 26th when I "Step Out For A Cure"!!! Thank you so much...and may God bless your life as you make a difference!!

Follow the link above to give online:)

If you prefer to send a check please make it out to:

Michigan Chapter of the Scleroderma Foundation

Send to Judy Nichols
1147 S. 37 Road
Cadillac, Michigan  49601